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Jan 12, 2019

Seeking Advice for Expanding Food Options with Dietary Restrictions

This topic is about navigating food choices after having an ileostomy and undergoing chemotherapy. The person sharing their experience is feeling the loss of their favorite foods due to dietary restrictions. Here’s a look at their current situation and some helpful advice from others who have been through similar experiences:

- **Current Restrictions**:
- With an ileostomy, they need to avoid nuts, seeds, most roughage like collards, cabbage, and broccoli, and limit beans. Beef, pork, and fatty or greasy foods are also off the table due to diarrhea and cramping.
- Chemotherapy adds more restrictions: no sushi, raw fruits or vegetables, or lunch meats. Severe cold-induced neuropathy means ice cream, yogurt, and cold drinks are also out.

- **Current Diet**:
- The diet has become repetitive, mainly consisting of chicken, pasta, chips, potatoes, green beans, and bread. They used to enjoy salads, greens, nuts, and mostly plant-based meals.

- **Food Tolerance Over Time**:
- Many people find that their ability to eat a wider variety of foods improves over time, often between 10 months and 2 years after surgery. Chemotherapy can temporarily affect taste and digestion, but these issues often improve once treatment ends.

- **Reintroducing Foods Safely**:
- Try one new food at a time in small amounts, chew thoroughly, and drink water with meals. Be cautious of food pieces larger than the stoma opening, as blockages can occur 8–12 hours later. Start with well-cooked, soft foods before trying raw or high-fiber options.

- **Handling High-Risk Foods**:
- For nuts, consider crushing, grinding, or blending them into a powder, or mixing finely chopped nuts into easy-to-digest foods. When eating beans, adding GasX or Beano can help, but thorough chewing is still important. For gassy foods like broccoli and cabbage, eat them when it’s convenient to manage any increased output.

- **Preventing Blockages**:
- Chewing food thoroughly is crucial. Some people experience frequent blockages, while others do not. If blockages are a concern, a CT scan might help assess any issues with the intestine.

- **Nutritional Supplements**:
- Smooth peanut or almond butter can provide nut flavor without the risk of particles. A daily multivitamin or specific supplements can help make up for reduced fruit and vegetable intake.

- **Improving Quality of Life**:
- Accept that dietary changes are necessary, but treat yourself occasionally, being prepared for any potential issues. For cold sensitivity, try room temperature drinks and use gloves for cold items. Be aware of individual reactions, like eggs causing liquid output or red wine filling the pouch quickly.

- **Encouragement**:
- Many people with long-term ileostomies eventually find they can eat almost anything. Patience and gradual experimentation, along with guidance from healthcare providers, can help expand your menu safely over time.
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