January after 5 years and a prior attempt that was unsuccessful due to the surgeon finding everything inflamed… my Crohn's was active, and I had no clue. Prior scans and blood work showed all was normal. Connected the small intestine to the rectum. It's been a learning curve. Something not used for 5 years is now performing double duty. I have urgency under control, but I still leave folded ...

Hi all, this is my first post. A lady posted about using a Dixie cup while showering to keep the bag dry. Is this a brand? Also, any suggestions for added support for playing tennis? Thanks, Jackie.

Question from a new ostomate: How do you handle emptying an ileostomy when outdoors for hours or all day and no bathroom is nearby? For example, on a boat ride, hiking in a group, just sitting with friends at sunset, sunrise, or around a campfire? How about when camping, either backpacking or car camping? Are my tenting days over?
Thanks
Bruce

Hi Guys,

New here. I've had one question on my mind that I've been unable to find any answers on. In November I was finally relieved from Ulcerative Colitis after failing a few medications and throwing in the towel. I went into surgery explicitly wanting the bag and the bag I did come out with (loop ileostomy with a constructed j pouch, step 2). My surgeon is already pushing me to finish up ...

On the topic of dressy dresses, jumpsuits, etc., for us ostomates - there's a company called "lightinthebox" where I found the perfect LBD. Here's the description: Women's Classic Little Black Dress Mini Dress Contrast Lace Scalloped Neck Mesh Sleeve Casual Party Fall Winter 2024. I'll try to post a pic because I can't post it from the website here for some reason.

It's been a year since I left my colon at the hospital and have been blessed with overall good health. I am very active with hiking, biking, skiing, and embarking on a 3-week trip to meet my son in Nepal for a few weeks of trekking!
I currently use a stealth belt for my activities but wanted to get any other advice on what had worked well for others and travel tips. I have never taken 3 weeks ...

I have found that if you put the skin protectant all around your skin where your wafer goes and not just around your stoma, your wafer will stick better to your skin. So if you have trouble getting your wafer to stick, try that out. Let the protectant dry a little and then apply the wafer. It will stick down better and give you a better seal.

Hi everyone! I first posted here back in March of 2024, and it's been a wild ride.
Last November, I had a completely clear PET scan and was able to reverse my ileostomy surgery. I had no idea how difficult it was going to be to wake my colon back up and have all the organs down there play nice with each other. I was in the hospital for almost 3 weeks just waiting to poop. It finally happened, ...

Hi all, I know IRA surgery isn't performed as much as J-pouch, but I still have 10 inches left of sigmoid colon and a current end ileostomy. Last week, I had scopes and was told everything looked great and if I wanted to pursue surgery I should. I saw Dr. Remzi in NYC last year and discussed a J-pouch, but he never mentioned an IRA which suggests to me that he preferred a J-pouch since that's ...

Has anyone had a colostomy because you couldn't expel stool through the ano-rectal passage due to your pelvic floor muscles contracting rather than relaxing when you wanted to poop? If so, has it worked out for you? Any challenges or complications? Did you get it reversed at some point or do you hope to get it reversed? What are you doing to see if you can reverse it? I know it's a lot of ques ...

Saw the website showing August in Florida.
Might be a good idea for meet and greets... and grits?
Anyone interested in attending?
These conventions are eye-openers. It would be my first.
Thoughts?