I have Crohn's disease and I had my colon removed in 2015. I had an ileostomy bag from 2015-2020 and I got the take-down surgery because I thought it would make my life better, but it's made it so much worse. My diet is the most limited it's ever been, my body produces an unknown substance that burns whenever I go to the bathroom, and I essentially feel extremely uncomfortable. I've been essentially miserable for two years and am currently begging my surgeon to give me another ostomy bag. I'm wondering if anyone has had a similar experience and if you have any advice. <3
Why Join MeetAnOstoMate?
First off, this is a pretty cool site with 33,637 members. Get inside and you will see.
It's not all about ostomy. Everything is being discussed.
Many come here for advice or to give advice 🗣, others have found good friends 🤗, and there are also those who have found love 💓. Most of all, people are honest and truly care.
Privacy is very important - the website has many features that are only visible to members.
Create an account and you will be amazed.
Advertisement
Hollister
Talking about having an ostomy can be uncomfortable for most people. Still, it's something you can't always avoid.
Learn about some strategies that can make it easier to talk about your stoma.
Learn about some strategies that can make it easier to talk about your stoma.
Advertisement
Hollister
Ostomy surgery is stressful both for the patient and the caregiver, and creates a major life change for both people in a relationship.
Learn how to care for your loved one, while still taking care of yourself.
Learn how to care for your loved one, while still taking care of yourself.