Thanks Tippitop for sharing.
I already have a reversable ileostomy (7 years now) due to issues for years with incontinence. I tried another surgery prior to the temporary (reversable) ileo, which involved using a pacemaker in the abdominal cavity with leads into a grissils muscle which had been removed from my leg and wrapped around my anal opening. The reasoning and hopes were that I could control the incontinence with this device by using a magnet to turn it off when I had to have a bowel movement and then using the magnet to turn it back on when I wanted to control the incontinence. This worked well except that I also had a sluggish bowel and had many bouts of impacted stool. Eventually, I choose the ileostomy and had the pacemaker and leads removed. The surgeon also nicked my bowel during one of the initial surgeries and I ended up with an infection, which resulted in all wounds (two in my left upper leg about 6" long each and two in my butt about 4" in lenght) being opened and packed until they healed from the inside out. I spent 6 weeks in the hospital and another couple of months recovering.
However, right from the beginning with the ileo, I have had issues with leakage of not only the clear jell like substance (which I understand is normal) but also with stool leakage, pain and pressure. I would like to know if this clear jell is normal, why don't regular people without my problems (no muscle control in the anal area) experience the leakage. Anyway, after dealing with this issue for several years, I have finally requested that something be done with the leakage, pressure and pain. And finally, the doctor has agreed to perform the total removal of the large colon, the small colon from the stoma, the anal and rectum.
I am hopeful that it will relieve and terminate all the symptoms and leakage that has been happening.
I was just curious of other people's experiences with this surgery. The doctor has warned me that becuase everything is being removed, there is a large chance that I will get colon obstructions if the colon to the stoma lowers from the contents inside and may kink. These very seldom require surgery, but will require about a weeks stay in hospital.
I have had one blockage and spent a week in the hospital...it wasn't pleasant...but life.
Once again thanks for sharing.
Busyfoot98