Ok, but there's no fun in that.
AlexT
Jun 03, 2022 6:36 pm
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Posted by: ejbetty
Geekyjen,
Thanks for the reply. I will be seeing my doctor on Friday and mention Entyvio. I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared. The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade. Turns out I have been diagnosed with LUPUS. It is attacking my nervous system. I had ulcerative colitis in 1996 and they had to remove my colon. Had a J pouch for 10 years, until it started failing. I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently. I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared. I have had two hospital stays now because of the blisters and the paralyzing incident. I will be dealing with this forever now. I have just been working on acceptance.
I love this website because of wonderful people like you!
Betty
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Mayoman
Jun 03, 2022 10:27 pm
Damn!! I thought that was a private convo!! LOL. Irish humour can be quite colorful but it's all relative. Sit in an outdoor cafe and listen, you guys would be shocked!! Especially in Dublin, it can be hilarious, double entendres etc. People here can be so funny and not even be aware of it themselves!!
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Mayoman
Jun 04, 2022 12:00 am
"They look like they could both do with a good feed of Irish Roosters .(...not THOSE Roosters !! Big Irish Spuds called Roosters !) Bacon and Cabbage .. good shite!! They need meat on their bones ...she could stab him with an elbow!!" This is what an Irish Mammy would say about the elegant couple LOL..
eefyjig
Oct 26, 2022 12:26 pm
SallyK, I just saw this. What an inspirational video. Please tell me you went dancing!
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Past Member
Feb 23, 2023 6:31 pm
I've had an ileostomy since 2020. I recently went to a 70's party dressed like Stevie Nicks at a local bar and grill with some friends and danced most of the night for the first time since my surgery. My confidence has finally showed up and I had a blast with absolutely no "problems" whatsoever!! So just do it and have some fun, but only when you feel you are ready!!!