I had my colonoscopy on Thursday, and the doctor said I am on track for my 6-month reversal, which is in January. She was very happy with my general surgeon who did the emergency surgery and said that he left her plenty to work with.
I'm very excited about the opportunity to return to a “normal” life. But I have so many emotions. I'm nervous. I'm scared. I'm excited. And I also feel bad th ...
Not sure if this is the right forum, but I had my first CT scan since surgery on 7/24/25. Came back with no signs of reoccurence or metastasis!
Still waiting on my ctdna blood test, but wanted to celebrate one good result!
I FIGURE I WAS BORN TWICE, once when my mother gave birth to me way back when, then again when I came out of recovery after the ileostomy surgery. I was twenty-one that time. I think that surviving after the second birth was the most difficult. The first birth presented me with a blank slate; the second birth a blank slate with obvious, confounding complications. Following the first birth, ...
Those of you who recall Letterman's top ten list, I'm reviving/revising the late-night comedian's popular subject for those interested. Think of it as a checklist from seasoned members put together as a helpful bit of advice. There are no wrong answers.
ME!! go first with number 1.
1) Advice/suggestions/replies offered from various and seasoned members—what works for one or two folks may n ...
I wanted to share that I had a big milestone today. I finally went back to work in the office! My employer went hybrid after the pandemic and requires at least two days in the office, but as I have a two-hour commute by train, I had received permission to work from home full-time after the surgery, and now it was time to go back. So far, everything has gone swimmingly.
Hmm...I've been a member here of this wonderful community for some time now and it's been so wonderful to read about the journey of others who are finding their way. I've had my urostomy since I was eight years of age and I had a diverted bladder before that. The latter didn't quite work and the urostomy was created. Growing up with it and the challenges that were presented over the years of m ...
I have noticed that some people are talking about the cost of products.
I am wondering what the costs are that you have to carry.
Prior to surgery, I had specialist appointments with colorectal and plastics. Also, I had CT scans, ultrasounds, biopsies, and pre-op meetings. I had surgery and spent 23 days in the hospital. I had daily hospital care at home, followed by chemo and radiotherapy. Un ...
Hi everyone! I just wanted to share an update that I've found a good rhythm now two months post-ostomy surgery, and it feels like it's almost fully healed, for which I'm grateful. I've been putting ointment around the edges whenever I add a new bag, which helps. I've been eating more consistently, which creates better flow. I'm grateful for all of your support with learning how to listen to my ...
Hubz had a regular checkup with the oncologist on Friday (his numbers are improving), and as they were asking how he's feeling since surgery, they became curious about how he's doing so well with his ostomy, both physically and mentally. He credited doing research online, trying different things, and especially the support from this group. They were asking because they see so many patients str ...
I first started on here in October talking about my stoma being moved from the right to the left and having numerous leaks and bag changes. I've said it was so short (almost flat) I couldn't see where to place the bag. Well, the last three bag changes went without a change for 7 days! Back to my old schedule when it was on the right side. It did come up ever so slightly, so I just practiced fo ...
I'm curious — has anyone here been pregnant with a stoma? How did it go? Was it extra challenging, or just another one of those “figure it out as you go” adventures?
My main worries are the usual suspects: keeping up the energy, the growing belly changing how the appliance fits (because my stoma already has a mind of its own!), and the whole idea of being pregnant after being sick for ...
