I have a very sore bleeding stoma. So painful I cannot sleep. Been to see my nurse about 5 times.... no change. Anyone got any ideas. I'm desperate now. Ruining my life. Thanks.
Verdun
Jun 11, 2020 9:18 pm
Past Member
Jun 11, 2020 9:51 pm
Is it sore around the skin area? Stomas always bleed. I would suggest if your skin is sore don't put a bag on but catch liquid into tissue. Put some calamine lotion on all sore areas. It means you being awake throughout and I guarantee after 24 hours your skin will have started to heal.
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jaykay75
Jun 12, 2020 5:23 pm
My stoma itself has never hurt, but the skin around it has caused me to lose sleep a number of times. I feel for you! I have started showering "naked" on occasion, meaning without a bag or wafer. Mine is an ileostomy which, as I understand it, is more active than a colostomy, so I wait until long after a meal before doing so.
I prepare a new wafer so I can put it on as soon as I finish showering. While in the shower, I remove the wafer and use an adhesive remover wipe, and let the water run over my belly. Then I use a foaming soap that is actually part of a facial skincare line called Vichy. It's for sensitive skin - no perfumes, and I swear I can feel my skin relax instantly. (I've used Vichy for years and love it.)
I would try to go wafer-free for as long as you can - even if it means sitting in the shower/tub for an hour. Let your skin dry completely before applying any products, and then apply them in stages, to avoid irritating your skin.
I've also found that letting out a good scream in frustration can be helpful. 🙂 I get so tense when my skin is irritated that I can feel it all over me. Slow, deep breathing is relaxing. As is Lavender essential oil, it's a stress reliever. Sprinkle a couple of drops in your bath while you sit on the edge of the tub with your feet in the water, (don't sit in the lavender bath without a wafer!) and maybe some Epsom salts. I find that if the rest of my body is calm, I can deal with skin irritation a lot more easily.
I hope that helps, Verdun. Hugs to you.
Lacey
Jun 15, 2020 4:13 pm
Hi,
I use Eakan rings. I prefer the slim ones. My stoma is not a perfect circle but irregular. It's like really sticky firm play dough. I tear it open breaking the ring, this allows me to run it right along the edge between stoma and skin giving me a tight seal between the flange and my skin. I've seen people apply it to the actual flange but I prefer applying it directly around the stoma for a more precise seal. I am assuming your pain is here? Or are you suffering on the wider skin around? It last quite a long time for me. Longer than paste. And is a complete barrier.
Good Luck!
L
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