Unexpected Drainage with a Colostomy - Advice Needed

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2
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662
Janelle
Nov 21, 2021 11:56 pm

Hi my name is Janelle  and I have had a Colostomy for many many years and recently I've had some drainage coming from my anus don't mean to be so blunt but I really need help and I'm not sure what this is draining out of my butt Has anyone ever had this issue before? Iam going to the doctor next month!!

lovely
Nov 22, 2021 1:48 am

Most of us have a mucus discharge; is that what you are having?

w30bob
Nov 22, 2021 4:04 am

Hi Janelle,

  As lovely said, if your rectum is still intact it will produce mucus that over time will make you fell like you need to have a bowel movement.  But if in all the years you've had your colostomy you've never had that happen..........and now you do.......you should see your doc.  I assume you're not seeing blood, as you'd have probably said that.   Not to be gross, but if you're concerned about what's coming out.......you can grab a sample to bring to your Doc the day of your appointment.  If there's no lab there your Doc can tell you where one is located nearby.  With a sample they can tell you exactly what it is.  Since you seem to indicate you never had a discharge before, and now you do..........it could be from an abscess or such.  Your Doc will probably want you to do bloodwork too.........you might want to call and have them send the script for the bloodwork now, so you can get it done and have the results in time for your appointment with your Doc.  I'd give 'em a call and get that sorted.  

regards,

bob

 

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Posted by: Karen & Stella
Fay,

I am one of those few people who still have a lot of output at night. However, I suffer from short gut syndrome after seven bowel surgeries that led to the loss of much of my small intestine as well as my large intestine from the initial bowel cancer surgery. It does get better over time as your system adjusts, but an ileostomy can be a challenging adjustment. It's important to connect with a good Enterostomal Nurse - ET nurses who can help you problem-solve over time. It's been five years since my initial surgery, and I had a great visit with a new ET nurse in December. He really helped me with the problem of high output at night. I had been getting up every 90-120 minutes to empty my high output bag because of filling. If I slept for three hours without emptying, I would have problems. My ET nurse helped my husband and me make a nighttime collection system using a Rubbermaid juice container with a handle and my old CPAP hose. This is connected to one of my two-piece high output bags and allows for continual drainage. It isn't pretty, but it has been a real lifesaver. I guess the real message I want to share is to stick with it, find a nurse who you can work with, and together you will find solutions to whatever challenges you face. This website is also an important support for me and others. There is nothing you will go through that others haven't already faced and figured out. There is so much wisdom here. Read the materials they've put together for newbies. There are a lot of great suggestions to use. I hope things get better quickly for you.
Karen