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Wafer not stick around stoma

Mon May 23, 2022 7:22 pm
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delgrl525 wrote:

Hi Beth,  I've been reading through all this good advice you've been getting and all the strategies you have been trying.  I'm so sorry you are having to go through this.  It sounds like you hav...

Delgr525,

Thank you so much for all your caring words. Very sweet of you. And I agree it is funny(not funny) that he is being like that all of a sudden,like you said they don't have to live with it so they truly don't know do they. Maybe he would have ended up messing up or something weird would have happened. I have hope and faith that God will bring me to the right doctor out there. In the meat I sure am gonna try some tips and research for more 💪. I hope you have a great rest of you night and thank you again. Sometimes kind words go a long way 

Tue May 24, 2022 2:47 am

Hi Beth,

It sounds like we have been experiencing similar a problem. My loop ileostomy stoma is also flush (almost subterranean) so it is extremely difficult to get a decent seal necessitating a bag change every 24-36 hours.

I've found Salts Alo rings help keep the inflammation down, along with Dansac barrier wipes, a fine dusting of stoma powder all topped off with a thin coating of calamine lotion.

However the problem is not going to improve, none of the stoma nurses can suggest anything other than what I'm already doing, so I will have to undergo a major operation in September to re-site the stoma. Hopefully that will ease the almost constant pain and discomfort I am living with at the moment.

All the best Nigel.

MeetAnOstoMate - 26,891 members
Tue May 24, 2022 6:59 am


Yeoman-Bowman wrote:

Hi Beth,

It sounds like we have been experiencing similar a problem. My loop ileostomy stoma is also flush (almost subterranean) so it is extremely difficult to get a decent seal necessitating a b...

Yeoman,

 I am so sorry your having this same issue I am, I know it's extremely frustrating. Sounds like we both don't have any other option but for them to fix it surgical ,with nothing working for either of us. Ya know I don't understand what's up with the stoma nurse the give options (not many) but it's like the fit everyone in a box. Meaning people having the same issues like us the say powder,convex and barrier ring . That's the box and if those don't work and because we are out of that box they don't know what to do and don't try and think of something. 

So with your operation they are switching sides ? May I ask.. why they aren't trying to pull it out more? I will be praying for you and your operation. 

Tue May 24, 2022 6:09 pm


Beth22 wrote:

Supreme,

I agree.. I went to my surgeon over 2 months ago  for that reason and he isn't going to , says she is working(her flow is good) so he isn't touching it stoma nurse say she looks healthy....

I've had a couple of stoma revisions and these surgeries were MUCH, much easier than the big ones needed to create the stomas. I was in overnight after the revisions but most people apparently can leave the same day. I've had two ileostomies: I had a temporary ileostomy on the way to an ileoanal pouch that eventually I had to give up once I was diagnosed with Crohn's, so I now have a permanent ileostomy.

Once you move, I hope you can find a good ostomy nurse or, even better, a team with lots of expertise. They will tell you when they run out of ideas, and this should matter to the surgeon if he trusts their judgment. Look for a surgeon who will listen to you as well as the stoma nurses, but it's only reasonable a surgeon will want all else to have failed before they resort to surgery. Everyone has their own expertise that is relevant, but at the same time, there's no need to expose you to unneeded surgical risk. 

Good luck and hang in there! :) I have despaired when dealing with a hypermobile (not sure that was the word they used) stoma that never stopped functioning. I mean, how do you put on a flange when the darn thing never stops spewing?!? Somehow it got better eventually. Partly I learned how to deal with it, but I also had to have two stoma revisions, which helped, too. You deserve support from stoma nurses in managing your situation.

Tue May 24, 2022 6:11 pm


K-Calgary wrote:

I've had a couple of stoma revisions and these surgeries were MUCH, much easier than the big ones needed to create the stomas. I was in overnight after the revisions but most people apparently can ...

I wanted to correct my bias: Surgeons can definitely be female, too! My GI surgeon happens to be male, which led me to say "he" in my post.  

Tue May 24, 2022 8:22 pm

K-galgery,

I am really sorry you had to go through all of that. Thank you for letting me know about the revisions I have been curious about it.. and the recovery. And thank you  very much I will be hunting that's for sure 😊

Fri May 27, 2022 11:30 pm

Hi Beth!  I'm sorry to hear about your problem.  I've had a permanent ileostomy for a little over 21 years now.  I remember having a similar problem after my surgery.  I have a flush stoma too.  My skin was very sensitive, and I developed rashes.  I also only use Coloplast products.  Fortunately, I had an excellent wound care nurse who helped me figure out things along the way.  These are some of the things I do, and while I understand that everyone is different, and some things may not work for you, I'm hoping that maybe something will be helpful. 

1)  Stomahesive powder really helped me with the rash and the red ring.  It can still sting when applying the appliance with the paste, but it heals quickly, and by the time I had to do another application, it wasn't a problem.  

2) Because you want to make sure that you're catching the leakage as soon as it occurs, a two-piece appliance makes it easier to see what is going on, than a one piece.  I use the Coloplast 2 piece Assura cut-to-fit convex Extra Extended Care.  It gives me more control of the shape of the hole, as my stoma can be somewhat oblong when it is at flesh level or beneath. Sometimes my stoma doesn't want to come up, even with a convex wafer, but it still helps to prevent leakage.  

3) Some pastes melt too fast or are too loose?  I've tried multiple pastes, and the only one that I can use is the Coloplast Stomahesive paste.  I've tried the Coloplast Brava, and it has a different stiffness(?) to it.  You don't need a lot of paste.  Apply the paste slightly further back from the hole in the wafer because if you don't, as the paste sets on your body, it will slide through the hole and cover the stoma because the stoma is flush with the skin.  I also learned to prep the wafer and let it sit for 30 minutes to an hour before applying.  It helps to make sure that everything is dry, but not too dry, so that it holds it's shape and won't seep beneath the hole in the wafer.  It's also helpful because of #4.

4)  You really don't want that wafer to be able to move or slide so that the stool can get beneath the paste.  I faithfully use Adapt Hollister Medical Adhesive Spray!  It was the game changer for me, when the nurse suggested it.  I know you say you are allergic to most products, but maybe you can look to see if there are ingredients within this product that you are not allergic to, because that was the main thing the nurse suggested that helped.  It is not the same thing as a skin prep spray.  It is very sticky and moisture resistant.  I've tried to see if I can find another product that is comparable, but I haven't found anyone who makes it but Hollister.  Unfortunately, I did learn that Hollister discontinued the spray, but you can still find it online in multiple places such as Amazon, Ebay, and some online medical stores.  I am very upset about this, but I plan on stocking up on it until I can find something comparable.  One can will last you quite a while.  I spray it all over the wafer after applying the paste, and let it dry. 

5)  I also use a skin prep, but if I'm dealing with a rash or broken skin, I use a non-sting wipe.  Make sure it dries out completely before applying the appliance.  Apply it right over the stomahesive powder.  When my skin is healthy, I use Skin Tac Liquid Adhesive.  It helps to maintain a strong bond with the medical adhesive spray.  I can get a wear time of at least two weeks, but I have worn an application for as long as 6 weeks.  Because I'm using a two-piece system, I only have to change the bag out once a week to every two weeks. 

6)  The placement of your stoma can make things complicated.  Mine is right under my waistline, so the wafer is right where my skin folds are when I bend.  After I place my ostomy on, I wear an ostomy belt to hold it in place until it sets completely.  It helps for when the skin seeping causes the wafer to not adhere all the way.  Usually I wear it just for a day, if I change it in the morning.  I'll wear it over night, while I'm sleeping, if I change it in the evening.  I've gained pandemic weight, so I do have to wear it more, just because of my fat folds.  :(  It might be helpful for you to wear one all day, and all night for extra security until your skin heals.

7)  When I change my ostomy, I wear loose clothing and underwear.  I used to wear tummy control underwear, or tight pants to hold it in place, but that will cause stool to accumulate right at the wafer and seep out beneath the paste.  I can still wear these things, but I make sure that the the appliance is set for at least 24 hours before doing so.  

8)  When I did have leakage, it tended to happen more at night, while I was asleep.  I really had to pay attention to my bowel habits because I don't want to have too much output while I'm sleeping.  Ballooning from gas made it come loose real fast.  Also, while lying down, heavy stool output can accumulate right around the top of the wafer, which will break down the paste more and cause stool to sit right on the skin.  

I hope something in that was helpful to you!  Good luck!

Thu Jun 23, 2022 11:52 am

Hi! I also have a stoma that's pretty flush and I'm allergic to most adhesives. This helped me and I know it sounds crazy, but it works! 

My stoma nurse asked me to try the sensura mio two piece system, well it gave me a terrible allergic reaction!

My stoma nurse then told me to get some flonase and use it like a barrier on my skin before applying my wafer. I spray it into my hand and wipe it on the skin around my stoma out past where the wafer will be. Let it dry and your rash and redness will dissappear by your next change. 

It works! The steroid in flonase blocks the allergic reaction of my skin, with any product. Its been a life saver for me.

I hope this helps you! 

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