Alternate to J-pouch

In this discussion
Replies
2
Views
508
berket13

Hi everyone.

I had an ileostomy for several years. Recently, however, a hernia grew, strangling a portion of my small intestine. The small bowel had to be cut 70 cm due to complications.

According to my surgeon, I have a jpouch with a big piece of small bowel cut out.

She recommended another procedure where the small intestine is joined together with the portion of the large intestine that still remains (the stump).

I wanted to ask the forum if anyone has any experience with the alternate procedure and could comment on it.

Also, has anyone had a jpouch with portions of their small bowel cut?

Thank you.

Gray Logo for MeetAnOstoMate

Why Join MeetAnOstoMate?

First off, this is a pretty cool site with 33,093 members. Get inside and you will see.

We're not all about ostomy. Everything is being discussed in the forums.

It's a very special community, embracing all ages and backgrounds. People are honest and truly care.

Privacy is very important - the website has many features that are only visible to members.

Create an account and you will be amazed.

SallyK

Just wanted to wish you good luck with everything.

Gray Logo for MeetAnOstoMate
Mayoman

Hi Berket , I had this proposal, a 1) Direct connection . 2)Koch Pouch with a Valve in your belly . The Small Intestine is connected to the Valve. It empties with a Catheter . 3) The JPouch . This will work , generally , for a limited period ( just me ?) . Pouchitis is a Chronic Bacterial Infection and if you get it it spells the eventual end for the J-Pouch . I got a good 7 or 8 years of good times and another ten of varying pain and suffering ! The Jpouch is a risk but you might get lucky. The fear is that you end up with Short Bowel Syndrome which means Tube Feeding for life ! Because they have to use a part of the Small Intestine still there to create the J-Pouchlocated down behind your Pubic Bone . I had some very good years before it failed .

No matter what you will be wearingDiaper for a year at least . A Nephewin Chicago had the Direct hookup and he was pretty miserable for a long time ....liquid poop all the time, day and night for a year at least . . Haven't heard how it ended , I'll ask him how it progressed.

The Koch Pouch is a Very Specialized and is Patented so is Very expensive , insurance might not cover it . I went to a Specialist in Kings College London and he advised against the Koch Pouch. He wouldn't try to fix the J-Pouch once it starts to fail ...Huge risk of Short Bowel because of more Lost Small Intestine .

I got the Permanent Ileostomy and am now pain free and relatively happy in dealing with. These surgeries take years of your life and pain and suffering. Personally , after the J-Pouch experience I myself would not do the Direct connection. Your Small Intestine cannot absorb liquid like your Colon. You are depending on the Small Intestine to function as a Colon and hope it will absorb liquid and stop the liquid poop . If it does it will take a long time . The J-Pouch surgical technique .may haveimproved ...I'm not sure but it's probably the same procedure I had with little difference . It's a hard decision and they have good reason to Not want to do the J-Pouch .

Your only options would be the Direct Connection or Ileostomy . I'll ask my Nephew howhis Direct Connectionis working now and post it .

Hope I was of some help Magoo

All times are GMT - 5 Hours