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Dehydration

 
This is the best website for people with an Ostomy. So much understanding.

Hello, I have a high output ileostomy and take Imodium to try and slow it down, the biggest problem I have is that in the mornings it feels like I have been hit by a bus, I feel as if I have got a hangover from hell and I don’t even drink alcohol!!!! 
    Does anybody else have this problem and how do they cope with it ?

Axl
 

Hi Andy

I believe I had something similar to what you speak of. For me dehydration mainly means electrolytes, just ploughing through plain water can flush you out and cause dehydration/electrolyte problems as plain water is dead empty water. I started putting 1/4 to 1/2 of a teaspoon of salt into every litre of water I drink and a cheap electrolyte tablet containing no sugar which gives me a little potassium, sodium , magnesium and a little flavour, I also add a liquid magnesium. Just start with adding salt to your water as this alone gave me the biggest boost. Use a quality salt, not white table salt. Salt had been much maligned for a long time and I am of the opinion that the RDA's are way to low. Have a good read through this below regarding salt intake information. Making up my own drink has worked well for me

https://drinklmnt.com/

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Axl wrote:

Hi Andy

I believe I had something similar to what you speak of. For me dehydration mainly means electrolytes, just ploughing through plain water can flush you out and cause dehydration/electrolyte...

Thanks Axl, 

Nurse just told me the whole “dead water” bit yesterday. My beloved coffee is a diuretic so I’m searching for alternatives, I’m going to start here. I had enough of liquid IV and Gatorade, I have a smoothie almost everyday and that does help.

Abe



Last edited by Abefroman1969 on Sun Aug 21, 2022 7:48 pm; edited 1 time in total
 


Axl wrote:

Hi Andy

I believe I had something similar to what you speak of. For me dehydration mainly means electrolytes, just ploughing through plain water can flush you out and cause dehydration/electrolyte...

For that bus ride you could also try using the “Pearl” sachets. Insurance actually covered mine. They just turn watery output into a gel so you get less movement with your appliance.

Here’s the brand I bought.

Abe

 

I’ve never understood the concept of pumping so much water into anyone’s system. I know we all need to stay hydrated, especially those with ileostomies. But the plain water flushes your system out and you need to replenish the vitamins/minerals. When it’s really hot outside and I sweat a lot, I add a Halo Hydration pack to a small glass of water, usually before bed, to help replenish some  of the things I’ve sweated out during the day. Otherwise, I’ll drink some water but also milk, juices, Gatorade, Powerade,etc. to put stuff back into my system. 

 

Your Consultant/stoma nurse & dietitian should all be working together to get your output under more control even if it means sending you to a special unit that just deals with high output stoma's....what dosage of Imodium are you taking and is capsules or instants you can take very high doses with Dr's advice only and other meds at different intervals so as 1 is wearing of the other kicks in and injections too, I'm sure your already drinking dioralyte dietitian may need to increase the amount you drink, need to look at your diet to as to what your eating and drinking tea/coffee fresh orange juice ect should really be avoided with high output stoma's and plain water add cordial drink to it, you need to be drinking a minimum of 2 liters possibly 4 but that's for specialists to advice and maybe TPN if your not already on it, with all the problems your having they really need to get on top of  it I highly recommended you insisting they send you to a specialist unit if they don't get your output under control soon kidney failure is just one of the many problems you face in the future   


 

Hi everyone - I've always found Lucozade Sport a really good of replenishing - along with most over the counter remedies 

 

Hey there,

I have struggled with dehydration. I have had to go to the er 3-4 times for a bump up. IV fluids.and I am one that makes sure I am drinking water all day ,will drink apple juice,take vitamins,drink nutrition shakes ..pretty make sure I get and keep up on everything we lose so easily. The best thing I have found is drip drop. It's an oral hydration solution.Has everything we lose so easy in it. It has made a difference with me I drink one everyday  along with alot of water and some juice.

Have you had your levels checked ? Does that feeling go away as the day goes on or is it constant?

 


Beth22 wrote:

Hey there,

I have struggled with dehydration. I have had to go to the er 3-4 times for a bump up. IV fluids.and I am one that makes sure I am drinking water all day ,will drink apple juice,take vi...

Thanks for the reply, looks like we have similar problems, I’ve started to take supplements which seem to help but I forget to take them and in the Uk they cost the lots of money because they are classed as sports supplements…..

im going to ask my Doc to check my levels and see if he can prescribe me something 

 


AlexT wrote:

I’ve never understood the concept of pumping so much water into anyone’s system. I know we all need to stay hydrated, especially those with ileostomies. But the plain water flushes your system ...

You are very correct here, the day I was asked to add up what I was drinking, I had inadvertently not carried something so what I stated was DOUBLE what I was drinking, got that back under control real quick.

 

Admins,

So now we can’t post about free samples anymore? What is going on around here? Those were very very helpful links. That was one of the best parts of the site. C’mon man!

Abe

I wasn’t advertising, I was helping others that asked for help.

Is this a new policy or just one that’s being enforced now? 

Now I’m just mad, I’ll see y’all in a few days.

 


Abefroman1969 wrote:

For that bus ride you could also try using the “Pearl” sachets. Insurance actually covered mine. They just turn watery output into a gel so you get less movement with your appliance.

Here’s ...

Since the helpful replies are being deleted I can message them to you if you like.

 

Hi Andy, have you tried jelly babies and bananas, as well as starchy foods, because I have the same problem. My stoma advisor recommended this as well as eating salted crisps to keep your salt levels replenished. I hope this helps :>

 

also, have you tried Dioralyte from your local pharmacy. :>

 


Abefroman1969 wrote:

Admins,

So now we can’t post about free samples anymore? What is going on around here? Those were very very helpful links. That was one of the best parts of the site. C’mon man!

Abe

I wasn...

I got an email before for posting about discounts for ostomy things. I guess trying to pass on savings to others is wrong too. 🤷‍♂️ 

 


Andy ileostomy wrote:

Thanks for the reply, looks like we have similar problems, I’ve started to take supplements which seem to help but I forget to take them and in the Uk they cost the lots of money because they are...

I would ask your doctor to check your levels you might just need IV fluids to get the dehydration under control and then drink the oral hydration and water water water and add some juice 

 


AlexT wrote:

I got an email before for posting about discounts for ostomy things. I guess trying to pass on savings to others is wrong too. 🤷‍♂️ 

What why? Isn't that we are all here to help and support each other And give helpful tips and tricks .. that's bull crap .. 

 

Did you know they make  silicone gel and rings for ones that cannot use the hydrocolloid they don't swell as much...

And the brava strip paste is awesome there's no drying time or messing with a tube you can mold it anyway you want or if you need to make it flat you can do it too helped me when my stoma was flat and inverted and nothing worked i still use it after I got my revision for that extra protection since I can't use rings.

If you don't have insurance medical monks is a great place to get supply's.

Sorry y'all I wanted to see if it would be removed from what I wrote. I have been seeing stuff has been deleted or taken down about products.



Last edited by Beth22 on Sun Aug 21, 2022 7:05 pm; edited 1 time in total
 

I use "Liquid IV" powder in a bottle of water.  It can be ordered from Amazon and Costco.  Hopefully you have something similar in the U.K.  It comes in various flavors and claims to be the equivalent of 3 bottles of water.  This is based on the concept that the electrolytes, sodium etc in the water slows the passing of the fluid, thus letting your body absord it more completely.  I'll use a second serving in the evening if I plan to have an "Adult Beverage" or two.  It's a fairly sound way to avoid dehydration.  I turned my Father on to it as he had dehydration issues.   

Hope that helps, 

SharkFan

 

Bob has posted before about oral rehydration solution.  https://www.meetanostomate.org/discussion-forum/viewtopic.php?t=13173

i know he makes his own and I feel like he also mentioned how to find some recipes for it.. otherwise i second both liquid IV and drip drop which others have already mentioned-although i’m not sure about availability/names in the UK.

 

I try to eat small meals often and it seems to hold more in. I still feel like crap unless I have a Gatorade every day. It's a lot of hydration packs now. Liquid IV and some others. Try that. 😊

 

Hiya!! My bag starts spilling about 48 ounces at night, starts around 6pm-7pm. If I take to much Imodium I obstruct. I find that coconut water has helped me the most and unfortunately a lot of carbs to try to bulk. Fruits, tomatoes, cucumbers will pour out of you. I usually eat a high fibre cereal and during the day I am great but yes the exhaustion and dehydration gets old!! 
Blessings!

pascale

 


WIGirl77 wrote:

Bob has posted before about oral rehydration solution.  https://www.meetanostomate.org/discussion-forum/viewtopic.php?t=13173

i know he makes his own and I feel like he also mentioned how to find...

Thank you so much for that info!

 

I have found drip drop to be the best for staying hydrated. I drink 2-3 packets a day. 
Also potato chips are a great way to thicken output and get some extra needed salt. 

 

Hi Andy

I'm a walker so get dehydrated fairly quickly. I now drink coconut water which has all the salt and sugars in. Also I have bought some tablets from Tesco pharmacy called ORS hydration tablets.  They really help. I get headaches if I don't drink enough. I take a big pint glass of sugary squash to bed and drink it throughout the night. Don't use the no sugar ones though.

Hope this helps.

 

Hello Andy, I too was discharged with a high output ileostomy after having had a pouch reversal. I'm not sure of your situation, but I too was prescribed mountainous amounts of loperimide and a litre of St Mark's mix as well a a litre of "other" liquids. I found though that this settled down over several months, so don't despair, it may improve as your body adapts to the new situation. I now take loperimde only when I need it. We are all given lots of advice about food and avoiding blockages and slowing things down, but a simple piece of advice is often overlooked. That is to sip drinks and not glug them down too fast. Sadly, without a colon, the water can't be absorbed and is dumped into the pouch.

As to the horrible feeling hmm, should check with your hospital, but I have found I can feel bunged up if I take too much loperimde, so maybe check with your nurse/doctor to see if it could be titrated to match your situation better. I still take an ORS tablet occasionally. I see sometimes people are rightly concerned about taking too much sugar, but with an ORS, the sugar (glucose) is part of the mechanism to get the ileum to absorb the electrolytes, not to improve taste.

 

Definitely been my number one health issue since loosing my colon. I suggest looking into DripDrop. Imodium and lomotil have a minimal effect on me and I have taken both at different frequency and times and combinations. I have had 14 surgeries since I’ve beginning and been on narcotics for the pain only to learn I’d by far the most successful to control my high output. 

 

I use a product called Drip Drop.  It is a powder that you mix with water. 

 


Abefroman1969 wrote:

Thanks Axl, 

Nurse just told me the whole “dead water” bit yesterday. My beloved coffee is a diuretic so I’m searching for alternatives, I’m going to start here. I had enough of liquid IV...

Try a product called DripDrop.  My gastroenterologist suggested it.  I get it over the counter.  

 


Abefroman1969 wrote:

Thanks Axl, 

Nurse just told me the whole “dead water” bit yesterday. My beloved coffee is a diuretic so I’m searching for alternatives, I’m going to start here. I had enough of liquid IV...

The caffeine in coffee (and teas also) acts as a diuretic. Decaf coffee/teas n herbal teas should b  ok. 
maybe try 1/2 caf coffee - still get a caffeine ‘bump’ but less of a diuretic effect. 

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