Hi, I had a colostomy for 5 years after an episode with c. Sorry, still can't write the word. I developed a parastomal hernia last year which grew to a good size and caused all sorts of problems. So I had a reversal 3 months ago, the operation went well but 4 days after being discharged I developed a rectovaginal fistula. This is the most awful thing and I'm now regretting the reversal. I'm due to have this repaired soon. Has anyone else had dealings with these things? Any advice would be greatly appreciated. Thank you 🙂
07summer13
Mar 29, 2024 4:39 pm
Jayne
Mar 30, 2024 1:14 am
Hello 07Summer13
Are you aware of Clare's site? She is from Nottingham, UK, and may be able to share stuff that will resonate and has experience of related situations to your own:
Nine-year stomaversary – TOMAS THE STOMA
Hope this may be of help
BW
Jayne
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ConnMan
I began my Urostomy life February 27th, 2023...a month and a half ago. I stumbled upon this site from another on Youtube and website called VeganOstomy and between that site and this one, most of my fear and worry of not having any answers other than calling the Dr's office recording menu and hoping to hear back in the next day or two for an answer to leaks, skin irritations etc, or just feeling alone and the "no one understands" thoughts I had to look forward to in my mind were all put to rest by these two websites and the community here at MaO!! I have been here for a few weeks now, and the help and support offered by the members here is just amazing!! The information and support is absolutely priceless for anyone recently out of their surgery and have tons of questions or had it for years...sit down...have a good read and you will see for yourself!!
aTraveler
Mar 30, 2024 4:18 pm
I had successful colon resectioning and later developed two enterocutaneous fistulas. The hope was that the smaller one would dry up and the larger one would shrink enough to be clipped. While waiting, I developed gastrointestinal hemorrhaging. I had to have the fistulas surgically removed along with abscesses. This is how I got my colostomy. I am now eating and feeling better than I have felt in years. Fistulas can be quite disgusting. Embrace the surgery for you will be thankful afterwards.
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