Ilieostomy

I am coming up on my 1-year anniversary of having my ileostomy. The doctors gave me a year to live when I came home due to my complications. I was in final stage renal failure but now go to infusions 3 times a week, and still losing weight. I'm now 99 lbs. I have an upbeat personality and I believe in miracles; just some days I wish I could put this fake smile away and just be honest about what I'm going through with someone who understands, that's all.

Sounds like you have gone through a lot. You don't have to wear a mask around here. Please be yourself. It's ok to have down moments even when you are a positive person. I think it's great that you have beat the odds. Take one day at a time. 

Dam Girl, Happy Anniversary! Way to go!!
I get it, it's a big, crowded, lonely world out there! But lots of good listeners here!

I will be praying for you!!

Cplumber

Hi Lonely, happy stomaversary. I've had an ileo now for 30-some years. After every surgery, I've lost some weight, and it's hard to gain it back, especially being an active type of person. I like to walk in the woods and also take the dog around the neighborhood, but that gives me an excuse to snack on goodies.

Lonelyunicorn, you stated you believe in miracles and in your case, to live beyond a year is indeed a miracle. One thing that has been cathartic for me is to share lessons that I have learned from my struggles with others who are dealing with struggles similar to the ones I had to overcome. You certainly have overcome much, and your knowledge is invaluable. So please share, and it will lighten your load.

My Ostomy Journey: April | Hollister

Hi lonelyunicorn.

I understand, I hear you, I am here to listen and to share. Whenever you feel the need, please do reach out and I will do my best to help support you. You are not alone in this. It will get better. Have patience and trust that time will pass and things will get easier.

Regards

Myfanwy

Hi lonely,

Wow, way to go! No fake smiles allowed around here... just compassion and understanding about life throwing us all curveballs. The best parties are the ones with the most people... so don't be a stranger! And happy anniversary!

;O)

Welcome, Lonely. Smile when you're really happy and frown when you're not; we understand. Regards, IGGIE

I can relate to your unwanted weight loss. After my ileostomy, I was down to 77 lbs. I'm usually 117. I was able to gain 25 by eating 4,000 to 4,500 calories a day, but the weight melted away due to a thyroid disease. All that work! I kept a journal of what I ate. Now back down to 88 and waiting for my thyroid to die!!! Good luck to you!

Happy stomaversary, you have overcome so much. Put away the fake smile. Feel free to share on here. We all have overcome so much and want to help.