kittybou
May 12, 2024 12:57 pm
IGGIE
May 12, 2024 1:58 pm
I have never seen that at all. I would go see your ostomy nurse and let her see how you're fitting it all together. Regards, IGGIE
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Posted by: Primeboy
Hi Mike and all. I am not sure how panoramic my perspective really is as my peripheral vision shrinks with each passing year. I can tell you that when I came to this website six years ago I was truly ;impressed by the positive attitudes of so many members, especially the younger folks who refused to let their ostomies define who they were or what they would become. I also came to appreciate that having an ostomy is not the same thing as having a disease. Pardon ;my pun now, but ostomies and cancer don't belong in the same bag. One is a solution, the other is a problem. Celebrating National Ostomy Day ;is also well outside my comfort zone. That's like celebrating National Wheel Chair Day. Come on!
I think there is a ;need for improved ;public awareness of ostomies, but I am not sure how that's best done. There ;remains ;some social stigma attached to our situation, and it's acutely felt among our young. We need to get out of the dark ages on this issue, but not by going 'in your face' to everyone else. I think Bill and NDY are 'spot-on' when it comes to telegraphing the right message to friends and family. People will know how to react when they ;see ;how we accept the cards we were dealt. I also appreciate the contribution some people here are making to this effort through their publications.
On a personal note, my son has been suffering from ulcerative colitis for years just like I did. I am very concerned because people with UC are at a higher risk for colon cancer. Years ago my GI told me to get annual colonoscopies to be on the safe side. I am glad I did because he eventually found pre-cancerous cells which led to several surgeries and my becoming an ostomate. Since then I have always ;conveyed a positive attitude to ;my son about wearing a bag because it has kept me alive to enjoy many more years with my loved ones. I think he got the message. We both go to the same gastroenterologist in NYC and get scoped on the same day. Father and Son moments!
Someone once wrote that our children are the letters we write to the future.
PB
AlexT
May 12, 2024 3:45 pm
No idea, maybe you got lava coming out and it melts everything it touches. 😁 I see the edge of my barrier ring a bit after I apply a new setup as it swells up around my stoma but no chunks in the output.
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Justbreathe
May 12, 2024 5:13 pm
Happens to me quite frequently—just means the hole you cut in your bag was a bit larger than the ring hole and output deteriorated the barrier ring which then drops into the bag... Yeah, sometimes I blame it on my less than 20/20 vision—reminds me of an old joke...
This guy says to his friend, “I have rectalitis.”
The friend says, “What the heck is rectalitis?”
He says it's when the nerves in your eyes get crossed with the nerves in your ass and you have a shitty outlook on life...
Not as funny now that I am an ostomate. JB
Words of Encouragement from Ostomy Advocates I Hollister
TerryLT
May 12, 2024 8:08 pm
Oh JB, you just gave me a big laugh! This is an old joke my mum used to tell, may she rest in peace. It was a slight variation on yours. The condition was called 'optical rectumitis', but resulted in the same thing, a shitty outlook on life! Interestingly, I've always loved the way you use 'prolly' for 'probably' as my mum is the only other person on earth I ever knew who used that when she wrote, usually in letters to her old army buddy friends.
Terry
Beachboy
May 13, 2024 12:35 am
Rectalitis... so that's what all my bosses suffered from! And I just thought they were all shitheads.
Beachboy
May 13, 2024 12:38 am
I cut my wafer hole much larger than my stoma size. Usually, the first day or two, small pieces of the barrier break off and float around the bag. Adds a little color to the mix.
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Justbreathe
May 13, 2024 4:06 pm
LOL... there's always a reason for ill temperament! Some of the reasons STINK!
infinitycastle52777
May 13, 2024 8:45 pm
I have had this happen before. If your stoma tries to wiggle under the ring, it can puff up and a piece can break off and go down into the bag with output. The way I have fixed this is that I make sure the ring goes just to the edge of where you cut the hole in the wafer but not past the edge.