My bag is so darn crinkly sounding at the slightest movement. I need help because this little(?) bundle of joy is for life. I've tried so many belts and covers I could open a boutique!! I'm always watching help videos and reading, but nothing helps with crinkly noises. I'm only 73 and have a good 20 years left in me.
maryorwitz
Oct 08, 2024 3:00 am
eefyjig
Oct 08, 2024 11:32 am
Hi Mary, love your attitude - I have a bundle of joy for life, too! Have you tried different brands? I use Hollister which is actually noisier than others I've tried but I like the length, the softness and the peekaboo window. I seem to recall Coloplast being quieter. Maybe give others a try?
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Posted by: ejbetty
Geekyjen,
Thanks for the reply. I will be seeing my doctor on Friday and mention Entyvio. I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared. The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade. Turns out I have been diagnosed with LUPUS. It is attacking my nervous system. I had ulcerative colitis in 1996 and they had to remove my colon. Had a J pouch for 10 years, until it started failing. I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently. I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared. I have had two hospital stays now because of the blisters and the paralyzing incident. I will be dealing with this forever now. I have just been working on acceptance.
I love this website because of wonderful people like you!
Betty
ron in mich
Oct 08, 2024 12:44 pm
Hi MO, I like the part about being 73 and looking forward to at least 20 more years. Some days I think that might be good, other days not so much. I've had my ileo for almost 40 years and don't mind if my Convatec pouch is crinkly as long as it's not leaky.
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Audrey Warren
Oct 08, 2024 4:45 pm
I use Coloplast and never worry about noisy bags and I use transparent so I can rinse it as clean as possible.
Audrey Warren
Oct 08, 2024 4:45 pm
I use Coloplast and never worry about noisy bags and I use transparent so I can rinse it as clean as possible.
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