Loop Ileostomy Refashioning: Anyone Else Experienced This?

Replies
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176
ashtonilleo
Apr 02, 2025 4:59 pm

I had my loop ileostomy refashioned in August due to it retracting, less than a year since, and they're thinking about redoing it again for the same problem! Has anyone else had the same experience as this?

Past Member
Apr 02, 2025 5:55 pm

Hi there, yup. I had 2 revisions and 4 relocations in a year. Sounds like it's in a bad spot if it retracted again. And since they already tried a revision in that spot and it didn't work, and you don't want to have another revision in the same spot, the hole will end up being too big. Sounds like it needs to be moved to another spot.

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ashtonilleo
Apr 02, 2025 6:07 pm
Reply to Past Member

My thoughts exactly; the only problem is I'm only small-framed, and on the left side is my scar from my colostomy, so I really don't know where they will put it.

Past Member
Apr 02, 2025 6:57 pm
Reply to ashtonilleo

I am small-framed too, and trust me, there are other places. I have had a stoma in every single spot they can put one, right and left side. I've been higher, mid, and low on both sides. They will probably have to move it higher up. They can go higher on the right side or higher on the left side. You still have places to choose.

IGGIE
Apr 03, 2025 12:50 am
Reply to ashtonilleo

G-Day ashtonilleo,

I hope they can work things out for you and you get satisfaction and results. Keep us up to date.

Regards, IGGIE

 

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ashtonilleo
Apr 03, 2025 6:31 am
Reply to IGGIE

Thank you!

ashtonilleo
Apr 03, 2025 6:32 am
Reply to Past Member

Oh, that's reassuring. It's so annoying having all these surgeries, and you think it's going to be the last, then more problems occur.

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