I had my loop ileostomy refashioned in August due to it retracting, less than a year since, and they're thinking about redoing it again for the same problem! Has anyone else had the same experience as this?
ashtonilleo
Apr 02, 2025 4:59 pm
Past Member
Apr 02, 2025 5:55 pm
Hi there, yup. I had 2 revisions and 4 relocations in a year. Sounds like it's in a bad spot if it retracted again. And since they already tried a revision in that spot and it didn't work, and you don't want to have another revision in the same spot, the hole will end up being too big. Sounds like it needs to be moved to another spot.
MeetAnOstoMate is a remarkable community of 41,405 members.
“I found real people, real humor, and answers I couldn’t get anywhere else.”
“The support here impressed my husband’s medical team - they plan to recommend it.”
“This community saved me when I thought I was a freak. Now I’m thriving.”
“Thank god for this site - I finally knew what to ask my surgeon.”
Posted by: Kimmy050263
I want to thank everyone for their suggestions, messages, and tips! So many have helped! We are learning as we go, learning the ins and outs of this bag. I have ordered special tape that does not irritate my skin and am now using Domeboro powder before putting on a new bag. My boyfriend says that my skin is so much less red!
Saw an ostomy nurse today; she said my boyfriend is doing everything right. One of my issues is that I am really thin, and my skin is really crinkly due to the surgery. We shall see how this bag goes.
This site is a real blessing. Everyone here is so awesome!
Kim
ashtonilleo
Apr 02, 2025 6:07 pm
My thoughts exactly; the only problem is I'm only small-framed, and on the left side is my scar from my colostomy, so I really don't know where they will put it.
Advertisement
Hollister
Using ostomy accessories to create a personalized pouching system can help you prevent leaks and protect your skin.
Learn about the physical and emotional benefits of using ostomy accessories.
Learn about the physical and emotional benefits of using ostomy accessories.
Past Member
Apr 02, 2025 6:57 pm
I am small-framed too, and trust me, there are other places. I have had a stoma in every single spot they can put one, right and left side. I've been higher, mid, and low on both sides. They will probably have to move it higher up. They can go higher on the right side or higher on the left side. You still have places to choose.
IGGIE
Apr 03, 2025 12:50 am
G-Day ashtonilleo,
I hope they can work things out for you and you get satisfaction and results. Keep us up to date.
Regards, IGGIE
Words of Encouragement from Ostomy Advocates I Hollister
