To recap, I have an extremely inverted stoma on a soft belly crease, and I had a horrible time with the bag I was using, always coming off just enough to let output get underneath the adhesive and destroy my skin. I tried glue and purple stuff, and nothing worked. The thing that changed the equation for me was changing the device I was using. Thanks to the Convatec video call, they realized I needed a more flexible product. Once I got that, things changed for the better. I also used a very thin product called “ExudermLP,” a low-profile hydrocolloid wound dressing, to cover the raw skin first, then the new bags over that. I think the combination of the extremely thin hydrocolloid covering and the better-fitting bag allowed my skin to finally heal! I am stunned to report that I last changed my bag on Friday, and today is Monday - I was changing daily and sometimes twice daily for a while there. This is with daily showers and regular eating (cut back on the fruit a bit), and I may not need to change it until tonight or tomorrow at this rate. I am so relieved that this worked and am planning to go for a walk to celebrate!
Congratulations! I'm so glad you found something that worked for you. I know this has been a long time coming.
This is a remarkable community of 40,833 members.
You will get real advice from fellow ostomates who truly understand you - things you won't find in the books.
And it's not all about ostomy - there is friendship and relationships too.
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Bill
MEETANOSTOMATE REVIEW.
I’d like to write a nice review
that might express something quite new.
Then I read previous points of view,
which said the things I wanted to.
I would endorse the things I’ve read
about what other folks have said,
for these are the benefits and things
that joining a site like this can bring.
When I was an initiate, (novice)
it seemed to be appropriate
to express myself in rhyme
as this is how I spend my time.
When contemplating what to write
with contributing to this site,
it seemed to me, my ostomy
could be expressed in poetry.
Thus, when I had something to say,
a rhyme, for me seemed the best way,
for rhymes can often capture stuff
that prose don’t capture quite enough.
I do appreciate the way,
this site lets people have their say
in whatever mode they will
about the things that make them ill.
There are not many forums for
discussing stuff most folks abhor.
So, this site fulfils a small niche,
where angst and problems can unleash.
Where raw emotions can decant,
so, folks feel free to have a rant,
and we can all associate
is something I appreciate.
B. Withers 2021
Congratulations, long may it continue.
I remember way back screaming with excitement when I had a bag that stayed on for 24 hours.
Learn more about contraception or family planning methods with an ostomy.
My Ostomy Journey: Ryan | Hollister
Awesome, good for you. I've not heard of the Exuderm product; thanks for sharing.
I am so happy for you to have found a solution. Thanks for sharing.
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