I just want to thank everyone for being so kind and answering me and trying to help me. This web site has been a god send for me. It is so helpful to know that there are others out there that I can talk to. I feel so alone and isolated sometimes. I came home from the hospital with advice from the ostomy nurse and very few supplies. I never had nor was I offered help from a visiting nurse. I was on my own!! Trial and error. I had my surgery on the 20th of November. I am a fairly recent widow so am truly on my own. I have had some nights ( one this week) when I had two major leakages and had to get up, change the bedding and shower in the middle of the night. I feel like crying--but--what good would that do??? I do not know anyone with an ostomy, but, am going to try and find a support group in my area. Again thank you all for being so wonderful and welcoming to me. Baba
baba
Apr 10, 2009 8:58 pm
annie_nu2
Apr 10, 2009 10:42 pm
Hey, good luck. I hope you can find a support group in your area, but if not, the folks on this site are great at sharing their knowledge and experiences. I got the answers to my questions and even answers to problems I didn't anticipate.
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Posted by: Brooklyn kara
Nervous but excited about tomorrow. I have been reading some of the threads here and am brand new to the site. I am grateful to have had the ileostomy so my body had a chance to heal but am truly hoping all goes well with the operation and future.
I have a collapsed disk in my back and sleeping on it for the past 7 months because of the bag has caused me constant daily excruciating pain. I haven't slept through the night and have had so many accidents.
I am so glad I found this site. Gained so much information so I am much better prepared for what happens post operation and what worked for people diet and supplement (fiber) wise. Thank you for that.
I have a collapsed disk in my back and sleeping on it for the past 7 months because of the bag has caused me constant daily excruciating pain. I haven't slept through the night and have had so many accidents.
I am so glad I found this site. Gained so much information so I am much better prepared for what happens post operation and what worked for people diet and supplement (fiber) wise. Thank you for that.
sweede
Apr 11, 2009 8:21 am
Hi Baba, I have found a contact number for ostomy support in your area, dude. Hope it is of use to you.
Sara-Tee ostomy chapter, Sarasota, Florida.
Maurice J. White 941-798-2056
Isabella Mallon 941-921-3817
Perhaps it's worth giving the 2 contact numbers a wee bell to see if they have regular meetings or other ostomy contacts in your area.
Hope you find what you're looking for, Baba.
P.S. Crying is a good thing, Baba; it gets it all out of the system.
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