Ostomy Support Forum

Hi, I have been using Hollister flex-end pouches with the "lock 'n' roll" closure as my predominant pouch for a year or so. I recently experienced a failure of the adhesive that attaches the Velcro strip to the discharge end of the pouch. I was able to temporarily use a paper clip to get home and change. Has anyone else recently had this type of failure? Littlefish

Greetings..
Having spoken to Kas, we both have decided to purge our inventory of unused, mostly expired, donated from others, ostomy supplies.
She and I will be listing our inventory for you to decide if you'd like some spare supplies for those "oh shizt" moments you run out or can't stop leaking.
It pays to have extra supplies.
There should be no issue with expired supplies. Some...not all wi ...

I would really like to find a friend who I can share with and listen to. I live on Long Island, New York, and would love to meet someone I can support and share my journey with. I have an ileostomy and struggle with high output and the usual ostomy issues. I've tried a support group in West Islip that meets on Saturdays once a month, but I found it hard to relate to some of the members. If any ...

About 3 months after my ileostomy and ureter repair surgery, I had to start working again and could not do anything strenuous. So, I took on a job working the midnight shift in retail (no customers), bathroom accessible any time I needed, light duty work (mostly). With that said, I'd been there over a year and took on a high volume, high stress position, thinking about higher pay and such. We ...

Just curious. Why do people get a permanent ileostomy? Why not keep your temporary one? I have a temporary one, but I'm scared to have any more surgeries! I'm not getting a reversal, but I'm also not having problems with my temporary ostomy. So, I don't understand what the purpose would be to undergo this surgery. Is there something I need to know???

Had a surgical review today. They talked about surgery as they are not happy with how small my stoma is and couldn't even get his finger in to feel for anything. They are talking about feeding tubes to bypass things to get me stronger for surgery. I'm not looking forward to it all, but needs must before I get any more malnourished. Having this site for support really helps. Thanks.

Hi folks,
Wondered if it was okay to jump rope with an ileostomy? What precautions were taken?
Thanks for your feedback. Jack D.

Hello
My question of the Membership should not be viewed as a negative one - but rather as a discussion concerning the elements involved and at what points a personal 'get on/get off' comes about.
My own circumstances are those whereby I am continuing to have intermittent blockage symptoms, despite careful diet and routine management over time - i.e., I am an experienced patient having had my ...

How hard is it for people with urostomies to date anyone!

Every time I go through these airport whole body millimeter wave scanners, I get pulled over for a body search. No longer does a quick check of my pockets allow me through the metal detecting arch unimpeded. Surely the staff can see that it is a stoma pouch on the screen and not have to embarrass us with a body search and explanation. Oh well, another hurdle to surmount, I suppose.

Hi everyone,
I'm new to this great forum/group
I had my permanent ileostomy in April 2024 after living with ulcerative colitis for 22 years. I've never been slim, but I'm now at my heaviest I've ever been, after putting on over 3 stone since my operation last year! My GP has got me signed up with a gym/PT, but I'm struggling to get to many sessions due to work, childcare, and overwhelming fat ...