For many years, I was either unable to travel or suffered with Crohn's while traveling. Two weeks ago, I took my first vacation with an ostomy and was able to enjoy my time away. Not only a vacation, but a vacation at Disney/Universal with a ton of walking, rides, and all kinds of food. I did have some anxiety to start with, but it turned out to be misplaced. It was such a great feeling to be ...
I recently discovered that Cortizone 10 comes in a spray, and it is a game changer for me. I have sensitivity to adhesives, so my appliances were making me miserable with rashes, blisters, and irritation. I had heard of other ostomy patients using Flonase, but that didn't seem right to me. When I saw the Cortizone 10 spray, I had to try it. I sprayed it on, let it dry, then sprayed the barrier ...
There are so many questions about ostomies.
And what we must wear “belly side.”
They are protrusions, but they're not illusions
that some hate and some wear with pride.
We turn to this site to help with our plight,
in search of the remedies
in a place with no enemies.
Some gain peace of mind, and many may find
some products that work; some make us shirk,
and some miss their old behind…..jb
ONE THING THAT I’VE LEARNED ON THIS SITE is how many different bodily malfunctions can lead to a person having to have ostomy surgery. In my own case, it was ulcerative colitis which, after a painful and lengthy preliminary engagement, put me in the hospital in November, 1963. I was in sorry shape, hurting badly, and confined in what was called a semi-private room in upstate New York. Tel ...
Yesterday, as I was receiving my chemo treatment, my colostomy pouch almost filled to bursting and had to be emptied quickly. At first, I freaked out; then I thought about how you guys have handled similar situations. I calmly got up, grabbed my emergency backpack, and walked to the bathroom with my IV pole and emptied and cleaned my pouch without a hitch. I guess I'm posting this to let you k ...
Hi everyone! I just wanted to share an update that I've found a good rhythm now two months post-ostomy surgery, and it feels like it's almost fully healed, for which I'm grateful. I've been putting ointment around the edges whenever I add a new bag, which helps. I've been eating more consistently, which creates better flow. I'm grateful for all of your support with learning how to listen to my ...
I (21) had elective proctocolectomy and got my ileostomy 5 days ago because of my UC. I've had a lot of time to mentally prepare, and the benefits of living free of my UC by far outweigh the negatives of having an ostomy, so I, for myself, am pretty happy with the new situation so far. Pain is there but manageable, and I'm quite mobile already.
I am giving my best to be open about my condition ...
Morning all, hope you are all well. Just a quick update. I didn't post anything here for quite a while. So I had my full panproctocolectomy on the 17th of July this year due to ulcerative colitis. My recovery went well, 5 weeks later I was back to driving, 6 weeks later I am pretty much where my old self was, and now my bottom wound is almost completely healed. Results of the removed intestine ...
I have noticed that some people are talking about the cost of products.
I am wondering what the costs are that you have to carry.
Prior to surgery, I had specialist appointments with colorectal and plastics. Also, I had CT scans, ultrasounds, biopsies, and pre-op meetings. I had surgery and spent 23 days in the hospital. I had daily hospital care at home, followed by chemo and radiotherapy. Un ...
Hello all
Although my colostomy surgery was in August, I have only been home and managing it on my own for the past month. This is my first post, but I've already been finding the answers I've so desperately needed from your responses to other newbies. My apologies for taking so long to say hello and to thank you. I am so blessed and grateful to have found you, since without you I would still ...
The weeks ago I started going back to work.
So, 5-6 weeks of healing and now 3 weeks in the books back at the job, that's 9 weeks since my urostomy.
The nice thing was HR asked if I had any "needs" or requests for "reasonable accommodations." I filled out the ADA form and just asked to be allowed to wear coveralls as the daily work uniform and that I wanted "light duty" / no heavy lifting for ...
