Unusual Sensation in Anal Area - Any Similar Experiences?

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canyon home
Apr 16, 2013 12:47 am

After three years since being diagnosed with colorectal cancer and having a resection, I'm still feeling really great. Except.... the area around my (non-existent) anus is lately feeling odd - not painful - but I'm more aware of it than over the last months. Has anyone experienced changes in that area - again not pain... but kind of strange.

mamawlaura
Apr 16, 2013 1:28 am

It's been two years since I had my total colon removed, including the rectum. The strangest feeling I have at times is the need to pass gas and there is no way that can happen. The sensation lasts only a few seconds, but it's sure strange. I have an ileostomy, and it will let me know if there is any gas wanting out... LOL

Posted by: Nini4

Well,  I  hit the two year mark. I went back and read my posts from when I first found this site. I was very fortunate in that I stumbled upon it only 4 weeks post op. I have said many times that this community really saved me. The first 2 weeks after my surgery I shut down completely. It wasn't until about the 3rd week that my son came in to my room, flicked on the light and told me I was going to have to get back to living because I was scaring him. I had fallen into such a depression.  He  ticked me off,  but it also made me stop and think- what was I going to do? Feel sorry for myself and sulk, or be grateful I was alive. 

I've re-read my journals from that time and it was after my son kicked my butt, so to speak, I took an honest inventory and had to dig deeper than I've ever had to. I mean, I had survived a pretty nasty divorce, after a pretty crappy marriage and that was tough. But this was different. I felt like I was now a handicapped person who would be limited in their life and be looked at as a freak. My mental state was precarious, at best. 

But then I found this site. I just lurked a bit before posting. I read so many of the other stories and I started to see just how full my life can be, I was not handicapped,  and certainly not a freak! The stories of survival, the sense of humor, the support and compassion was inspiring.  It was then I made myself get out of the dark, and get my sh*t together.  

Not all rainbows and sunshine at first, hardly! But with grace from myself - to myself, and the kindness and willingness of the folks here to be supportive, non judgemental and openly share intimate details about their life circumstances,  l not only survived but thrived. 

I think of all the years I had suffered with such extreme pain, barely functioning,  and the many hospital stays and how that is all behind me now.  (All fingers, toes, and legs crossed that I never have to go near a hospital for myself ever again. I think I'd rather have a fork stuck in my eye. I loathe every about them.)  

So, to everyone who has been a part of this journey with me, to say thank you is not enough. I'm forever grateful to know you all.  My Angels, each one of you. 

 And as the Grateful Dead famously said,

"what a long strange trip it's been!"

Im so happy I'm tripping with you all.


Monsieur Le President
Apr 18, 2013 10:20 am

It's well documented that people feel phantom pains - sensations in an amputated limb.
Your arse is just the same.

canyon home
Apr 18, 2013 1:16 pm

Well, that's reassuring.... I was thinking scar tissue maybe or hemorrhoids.

DH
Apr 19, 2013 9:05 pm

Hi Canyon, it's been almost 2 years since I had my rectum and anus removed and I get weird sensations as well. Sometimes it feels like something is going to fall out of my back end. But of course, that would be impossible. It could be phantom feelings, but my doc says it could be the muscles shifting around in there. I notice a lot of people on here who have had the anal/rectal area removed complain of the same thing. So I am guessing this is normal.

 

Stories of Living Life to the Fullest from Ostomy Advocates I Hollister

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mamawlaura
Apr 20, 2013 1:43 am

Thanks for reminding me of phantom sensations. I think that is my strange feeling of wanting to pass gas, with no rectum!! It's still a funny and strange feeling.