I had ileostomy surgery with a closure to the rectum at the end of October 2012. It is now six months later and the rectal wound has not closed, and I still have pain and drainage associated with it. I used a wound vac for 6 weeks, and it sped up the process, but it was too shallow to continue with the vac. Home health and my doctor agreed it would take several more months before it closed completely. I am unable to do any squatting or lifting of any kind due to 2 other surgeries and the wound attempting to close. Even a little bit of excessive walking or minor housecleaning seems to cause more problems for the new tissue trying to heal. Do any of you have a timeline that I can anticipate or suggestions for healing? My initial doctor that did the ileostomy did not stitch it up effectively, and I was left with a 6x2x4 cm opening. Is that normal?
I too had ileostomy surgery with a closure to the rectum in October 2012. I currently have a wound that will not close up either and it is frustrating to say the least. Mine was created as a result of my surgery and pelvic abscess infection formed. It is still 10cm deep and drains continuously and I asked my doctor last week what will speed up the healing process. My doctor was not sure...... It amazes me the lack of knowledge doctors have about healing. I requested a CAT scan to see what is going on in this area. I know exactly what you are experiencing. Good luck. If anyone has any suggestions for healing a wound, it would be appreciated. Penguins7
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Hi Crossley. Ya know, I think it’s all about feelings. I don’t mean the pain feelings which could control everything. I mean the feelings inside our heads, our hearts and even our souls. I mean the feelings of who we are now compared to who we were; how we accept our situation or maybe we don’t. My wife asked how I felt and I said, “like crap”. She asked what hurt and I answered, “Nothing hurts, well, everything hurts, I don’t know, It all sucks.” That was a long time ago. You question if your feelings are normal. How normal is it to relocate your butt hole to your belly where it’s usually in the way of your belt and, you know. But that’s where we are and for lots of us we are so much better off than we were before, physically. Emotionally, psychologically, well, that might be a different story. I believe talk therapy is wonderful if we could find a real empathic or sympathetic listener. So guess what! I found MAO and began “talking” with a keyboard with some of the wisest, kindest most sympathetic and compassionate folks on the planet. Regardless of where we’ve been, lots of folks here have been there and worse places and found their way back healthier and happier. We really do help each other.
Keep “talking”,
Mike
This may not help either of you (Penguins and Hot) but my GI was not keen on closure. His advice at the time was that closure is a very complicated procedure. That was enough for me. I decided to leave well enough alone; and, happily, my healing was rapid. Since then, my only issue with open-endedness is leakage of mucus which I can manage nicely. So, my two cents here is to advise ostomates who are contemplating closure to carefully weigh the benefits against the risks. PB
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It is almost embarrassing to be so lucky, but I too had a closure of the rectum. While it took longer than expected and caused postponement of radiation, the wound did heal. I am not sure if the treatment was the reason for the success, but I did have a weekly visit from the home care nurse who dressed the wound every week. I am sure I would have been unable to perform the procedure the same way. One thing they used was the medicine prescribed: Flamazine made by Smith Nephew - (Silver Sulfadiazine 1%). Luckily, the pharmacy did not have the 100 gram tube (about the size of a small toothpaste), so they gave me 5 20 gram tubes. BTW, this stuff works great for burns, including radiation burns - apply 2 - 3 times a day as prescribed. I used it when I tried to pick up a sandwich grill assuming the back was insulated; it wasn't. A minute after applying, the pain subsided.
You might want to talk to your doctor or pharmacist. Obviously, my surgeon has to be one of the best, especially since I just came home from the hospital where he removed my gallbladder and repaired a hernia around my stoma. I was home by 4:00 PM. I went in at 7:00 AM, and he removed a gallstone in February at 10:30 PM. Dr. Igor Goussev is my guy - just fantastic.
Hello, Hot for Teacher. I had my ileostomy closure in July of '09 (hence the four digits after my name). It was a very long, slow heal without a wound vac. After about a year, it was not really making any progress at all. At that point, the wound was small. Just big enough to fit a Q-tip with an opened up 2x2 gauze about an inch and an eighth deep. Sorry, I'm not good with metrics if you could do the conversion. The doctor said it was turning to scar tissue and it wouldn't close up more, and that I could either live with it or have another go at it and cut it out and try again. Primeboy is right. It is just a little mucus leakage, and if you can deal with that, that's great. Me personally, after two years, I had had enough of it and wanted it over with. I went under the knife, AGAIN, and it closed up great, and I am happy with it. My suggestion to you? ATTACK IT AGGRESSIVELY! Keep it dry. I should have. Even if it means changing the gauze every 2 or 3 hours. Wounds love moisture. Dry. Of course, run this advice by your doctor and ask him or her for some Silvasorb. I believe it's silver nitrate. It's antimicrobial and promotes healing. I think you still have a chance to close it up before it turns to scar. But I'm not a doctor, I just play one in the bedroom. LOL. Sorry, couldn't resist. Seriously, DRY DRY DRY. Good luck, keep us posted. SA.
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My rectum healed splendidly, so much so that 8 weeks after my initial surgery when I went back for a check, they were bringing people in to look and marvel. However, it never fully healed and I was referred to a plastic surgeon. He said it was not uncommon for the rectum to heal 90-95% and then stop for whatever reason. I am in the middle of the X-ray bits of investigation at the moment. I think the plan is to stitch up/close the cavity and then when that is done, I'll have a skin graft to seal it up finally and then no more yucky stuff coming out (albeit very little these days after 5 years).
As for timescales for healing, I don't know, but if I do find out, I'll post it.
Hi there
I actually had a colectomy done in Oct 2011 (resulting in a permanent ileostomy) and then a second procedure to remove the rectal stump the following summer. The closing of the rectum healed very, very well and I have had no problems at all. Prior to having the rectum closed, I had a lot of leakage and subsequent skin irritation, so the quality of life is much better now that the rectum has been closed (at least in my case!)
Best of luck
Thank you all for the insight. It helps to hear from others in my situation. My gastro doctor just blows it off and tells me to keep changing the gauze/pads often to keep it dry. Which I do on a regular basis. However, I am extremely limited on any kind of physical activity of lifting or squatting down, exercise, riding a bike, pulling objects or even handling my own luggage because my rectal skin is so thin and weak and tears easily. I am basically unable to even do some simple household chores for fear of ripping it open even more. Also, when I attempt more physical things I always have tremendous amounts of drainage. My surgeon seems to think it should be a couple of more months. He did discuss going back in to repair the openings as long as there wasn't any infection in the openings.
One more question, did you all have pain sitting the entire time the area was open?
One thing I did do just after the operation is to place some gauze tape across the cheeks to prevent any possible tearing and that worked very well. The home care nurse at first was skeptical; concerned about keeping the area dry. I didn't use the tape to pull tight just to prevent from pulling too far. And I used the Flamazine ointment.
Sorry to hear things are tough for you.
I had a colostomy in March 2010 after 28 years of colitis, followed by proctectomy in June the same year. It took at least two months for the wound to heal but is now fine. I just remember sitting on chairs as little as possible and allowing as much air to the wound as possible. As someone else said, keeping the wound dry and clean seems crucial, so dressing gown with no underwear for weeks, or nothing on at all from the waist down if no one else is around!
It all takes a long time and I know I wanted to get back to normal busy life as soon as possible but I think you have to give yourself permission to lie around for as long as it takes.
I had a lot of pain from sitting and used a 'doughnut' cushion for over a year, and still do on long drives. I had nerve damage from steroid enema use in my rectum for years so that took a long time to settle down.
I hope it works out for you.
Tim
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Donna
Hi Donna,
Thanks for the response. It has been frustrating, to say the least.
Rod
Interesting posts. I also had a big hole in my ass after APR surgery, rectum, sphincter muscle, and anus all gone. I have a permanent colostomy in October 2017. Then I had an abscess, I had to do sitz baths, and now the wound is finally getting smaller. At first, I had home nurses coming to change the dressing, now I learned how to do it myself and go to the hospital for wound care twice a week. This sure takes long, but at first, the hole was 12 cm long - now I have to cut the gauze to put it in. And interestingly enough, they say the gauze always needs to be wet; otherwise, it would not heal. And it does heal nicely now, and I change the gauze daily with sterile water which they gave me. It is 4 cm now, and I hope it will be closed soon as I am sick and tired of wearing pads down there. Looking after irrigation and stoma is work enough.