Living with Urostomy and Colostomy Since Childhood

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archnang
Sep 20, 2009 9:52 pm
hi all i am 49 50 in nov 09 i have both 1for water 1for poo as use would say urostomy & colotsomy. i was operated at 3yrs old so i have had both all my life and i do not have any problems what so ever with blockages stools etc etc and i just looked at this forum to see so many people with so many problems .was my surgeon so good mr bentley .i remember when i started school there was no appliances for me and i wore cotton wool so if anybody needs any advice let me know
corncob
Sep 21, 2009 6:53 am

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How incredible! It's one thing to consider an ostomy as a "inconvieniece" as i always have. You my friend have taken that term to a whole new level! God Bless!
Posted by: w30bob

Hi gang,

I was thinking what a great resource this site has been for me since I found it. It would have been really helpful, but maybe a bit scary, to have found it before my ostomy, but that's water under the bridge. But I got thinking about it, and now I'm questioning why doctors and hospitals don't provide this site's contact info to any patient even considering an ostomy today. And how can we change that so potential ostomates can learn about the road ahead for them by getting on here and asking questions before the docs go chop-chop. How exactly do you get all hospitals to provide their patients specific information, like this website?

I just happened to find this site something like 4 years after my ostomy when I Googled "ostomy forum" or something like that. But I never found it during previous searches.....so I found this site pretty much by pure luck. We need to find a way to make this site available to new or soon-to-be ostomates......as that's when we really need to commiserate with fellow ostomates. Anybody have any thoughts on how we do this?

Thanks,

Bob

janice
Sep 21, 2009 9:34 am
GOD BLESS YOU ARCHNANG!
gutenberg
Sep 24, 2009 6:18 pm


Well Archnang that is an incredible story when you consider what we have to chose from today. I shall keep that in mind next time I start bitching about something mundane, thanks for sharing.
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archnang
Sep 24, 2009 11:02 pm
forget mundane one think i tell my self everyday is... yesterday is history... today is a gift...tomorrow is a mystery ............so forget mundane
rgds archnang
 

Words of Encouragement from Ostomy Advocates I Hollister

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