I have read some posts where people say a hernia formed.What caused it and did it make the stoma bigger where it makes your cloths look like you have a giant ball under your shirt?? mine recently started getting bigger and i dont know why
Dandy Dan
Mar 20, 2018 11:56 pm
dadnabbit
Mar 21, 2018 6:32 pm
Dan, I have an abdominally cut ileostomy and had a ventral hernia almost immediately after surgery. They are usually caused by the incision not healing properly. My surgeon insisted it was NOT a hernia, but after two years of looking like I swallowed a soccer ball, I went for a CT scan ordered by my concerned PCP, and it verified a HUGE ventral hernia with three parts of intestine poked through and looped up into my stomach. Nurses and doctors will tell you, coughing, lifting pretty much anything over 6 pounds, and bending the wrong way can cause a hernia to pop through an already cut muscle. However, I did not cough, never lifted anything, even a 1/2 gallon of milk (5lbs) or bent or reached for anything. There seems to be no real reason except the way the muscle is cut, and every surgeon does that differently, and the way the cut muscle heals. If you have been a while with your stoma before the hernia appeared, lifting or coughing seem to be the most accepted and likely causes of hernias. Everything I have been able to research and confirm has indicated that they will always only get larger. However, when hernias are repaired they have an extremely high percentage rate of re-occurring.
Peace
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Posted by: ejbetty
Geekyjen,
Thanks for the reply. I will be seeing my doctor on Friday and mention Entyvio. I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared. The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade. Turns out I have been diagnosed with LUPUS. It is attacking my nervous system. I had ulcerative colitis in 1996 and they had to remove my colon. Had a J pouch for 10 years, until it started failing. I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently. I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared. I have had two hospital stays now because of the blisters and the paralyzing incident. I will be dealing with this forever now. I have just been working on acceptance.
I love this website because of wonderful people like you!
Betty
francis
Mar 22, 2018 1:03 am
Hi Dan shortly after my op I had a severe bout of Bronchitis which has caused a hernia to be formed
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walderpeee
Mar 22, 2018 3:33 pm
Hi Dan---Had my colostomy surgery six years ago. I do have a hernia right by the stoma. It does poke out more days than other days. Gone to two surgeons and they don't suggest surgery!! I think the reason is where it is located!! I ordered a guard with a belt and wear that to hold it in. Good luck!
Bmokind
Mar 29, 2018 3:14 am
I had a similar experience to dadnabbit. No education after my surgery. My surgeon told me it was too early for a hernia at my 6 week check up. Mine is like a volleyball now, hanging off my left side. I’m awaiting a consultation in my new city’s university hospital, but thinking I will opt out of surgery. I’m only a year out from my colostomy.
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