Can you folks tell me again the name of the waterproof tape you use on your skin barrier when you swim and hot tub? Also, I am looking to start exercising when the snow melts here and plan to possibly join the YMCA. Do you folks know of exercises I shouldn't do with an Ileostomy? Have any of you fallen on your stomach and bag?? How sturdy are they if I slip or trip and fall if I am out walking?? Do any of you jog at all or do you just do walking? I want to possibly work with a trainer to be able to build my strength and muscles up so I need to know what to tell them in regards to weight conditioning. Is spinning a good exercise to do with an Ileostomy? Sorry for all the questions but this is the place to come for most answers! Pamela
My tape is Nexcare by 3M. I also use Brava barrier strips by Coloplast. If you fall with a full bag I see that as a problem other wise the bag should be able to take it. My niece runs marathons with an ileostomy. Weight lifting, start very light. I am restricted to 20 pounds right now. I suggest 5 -10 pounds to start.
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About seven years ago, just about every aspect of my life was ostomy related. From the moment I was told an ostomy might be needed until some months down the road I existed as a person afflicted with a colostomy. I feared someone other than my immediate family might find out I had a bag. Ugh! What could be worse? Suppose it filled real fast when I was out with no place to hide and take care of myself. God forbid should it leak in church! Suppose I roll over on it in bed. I was a lesser creature, destined to a life of emotional anguish and physical routines different from most of the rest of the world. I felt like a freak. Then I found folks like you guys here, read your stuff, really “listened” to what you had to say and I began looking at things differently. We know perception is everything and I began to understand how good things were relative to what they could’ve been. So many folks had it so much worse than I did. That didn’t make my discomfort go away but it exposed how fortunate I was to be dealing with my stuff and not their’s. I felt a little guilt, maybe selfishness but quickly forgave myself by understanding I just wasn’t smart enough to fix my feelings. Then, I wonder what smarts have to do with feelings. My perception was warped so my perspective toward my existence was warped.
I learned over the last few years with the help of lots of folks right here at MAO that I could be better at living just by accepting some facts. It is what it is and so what? It’s not the worst thing to happen to a person.
I think everything is, in some way, related to everything else. I just put the ostomy thing in the back seat and drive forward.
Respectfully,
Mike
I do Taekwondo from time to time. I recommend if you're going to be doing any vigorous activity or abdominal workouts to use a form of support like an ostomy belt. I like the ones made by ostomy Armour but that's just me. As far as water goes I have never used a special barrier over top of my appliance. When I put it on I use Hollister Medical Adhesive spray #7730 and it makes a good seal even for my stubborn ileostomy. I have spent an hour in hot water with it and not had an issue. But when I get out I do have to change it. I've not been just swimming yet but I would say it should hold up well.
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