Help, pouch feels full all the time and when I insert my catheter in my stomach I get a dribble and little air, that' it, emptying every hour and stomach is very sore. This has never happened to me before. Does anyone know what the problem may be.
Haha just noticed I said sodomy pouch, now that' a laugh
Hello Stardust. Thanks for your post and sorry to hear you are having problems with your Koch pouch. This operation was discontinued in the UK for some years and has only recently been reintroduced in one hospital. It sounds like a great idea and device for having an internal bag for ileostomies. However, there must have been problems in the past for it to have been dropped from NHS procedures. If the Koch pouch is not a favourable option for surgeons, then I suspect you are not going to get many replies to your post. Unfortunately, I cannot find any reference to these problems on the net. However, I did find some useful general information and tips on how to care for the condition by simply Googling Koch pouch.
I hope this is helpful
Best wishes
Bill
NOTE: You might also get some useful information from past posts under the heading 'Premium Content' - 'J-pouch'.
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In both of my cases, I had no choice. It was surgery or be put 6 feet under! I thank God that He has been with me all these times. Without Him, I never would have known what to do and might not have gone to the hospital when I did. I don't know if you have had your surgery or not yet but I hope you will hang out on this website when you are done. I have learned a great deal through the people here and it is so great having others who have had the same thing done and been through what you are about to or have gone through. The only thing I have turned down is a reversal of the ileostomy. When the doctors did the emergency rebuilding of my original ileostomy this last February, I told them I did not want to go through this again. My doctor told me at that time that I was no longer a candidate for the reversal. In a way, I was very relieved. The last three years of my life have been a nightmare for me. I do not want to go through any of it again. If you wish to be rehooked up and they say you are a good choice for that, research it carefully. Every surgery I have ever had except for Old and New Maxine and the emergency surgery on my broken foot, I have spent weeks researching. I recently had my C5 C6 disk in my neck replaced with an artificial one. I went to my pre-op with 2 pages of questions for the doctor. I knew everything that they were going to do and could talk intelligently with them. I always try to research my adversaries! Don't cancel your surgery. It is nice not to have to suffer any longer with horrible pain. We all had to change a few things around when we had our surgeries but in the long run, most of us are glad we did it. I know I am. Good luck to you!