I am looking to get an ostomy wrap for both going to the gym and normal everyday wear, mostly to make things less visible. The two sites I've found are Ostomy Secrets and Pouch Wear. Can anyone give any suggestions, reviews, comments, complaints or any advice on what to get, avoid or anything? Thanks.
bukowski
Oct 25, 2018 2:56 am
Bill
Oct 25, 2018 5:44 am
Hello bukowski. I have tried a few different ones and feel that they should be made to suit each individual. However, as that is not going to happen, I have alighted on a product by CUI which they will make to my specification. Even then, It's not quite what I would wish for. Basically, I would not go for the tubular type
because after a few washes they stretch and become saggy and useless. I prefer the ones which have the velcro fasteners, where the adjustment is made as I put it on. This way, it allows for the natural expansion and contraction of the tummy area without having to chnage the whole device. Also, I found that the wider ones, which go right up to the ribcage, only feel okay whlle I'm standing bolt-upright. The slightest bend or sitting position make it uncomfortable and it aggravates my hiatus hernia. My solution to this has been to fold the belt over so that it is narrower but gives more support over the stoma.
I hope ths helps.
Best wishes Bill
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Posted by: Karen & Stella
Fay,
I am one of those few people who still have a lot of output at night. However, I suffer from short gut syndrome after seven bowel surgeries that led to the loss of much of my small intestine as well as my large intestine from the initial bowel cancer surgery. It does get better over time as your system adjusts, but an ileostomy can be a challenging adjustment. It's important to connect with a good Enterostomal Nurse - ET nurses who can help you problem-solve over time. It's been five years since my initial surgery, and I had a great visit with a new ET nurse in December. He really helped me with the problem of high output at night. I had been getting up every 90-120 minutes to empty my high output bag because of filling. If I slept for three hours without emptying, I would have problems. My ET nurse helped my husband and me make a nighttime collection system using a Rubbermaid juice container with a handle and my old CPAP hose. This is connected to one of my two-piece high output bags and allows for continual drainage. It isn't pretty, but it has been a real lifesaver. I guess the real message I want to share is to stick with it, find a nurse who you can work with, and together you will find solutions to whatever challenges you face. This website is also an important support for me and others. There is nothing you will go through that others haven't already faced and figured out. There is so much wisdom here. Read the materials they've put together for newbies. There are a lot of great suggestions to use. I hope things get better quickly for you.
Karen
I am one of those few people who still have a lot of output at night. However, I suffer from short gut syndrome after seven bowel surgeries that led to the loss of much of my small intestine as well as my large intestine from the initial bowel cancer surgery. It does get better over time as your system adjusts, but an ileostomy can be a challenging adjustment. It's important to connect with a good Enterostomal Nurse - ET nurses who can help you problem-solve over time. It's been five years since my initial surgery, and I had a great visit with a new ET nurse in December. He really helped me with the problem of high output at night. I had been getting up every 90-120 minutes to empty my high output bag because of filling. If I slept for three hours without emptying, I would have problems. My ET nurse helped my husband and me make a nighttime collection system using a Rubbermaid juice container with a handle and my old CPAP hose. This is connected to one of my two-piece high output bags and allows for continual drainage. It isn't pretty, but it has been a real lifesaver. I guess the real message I want to share is to stick with it, find a nurse who you can work with, and together you will find solutions to whatever challenges you face. This website is also an important support for me and others. There is nothing you will go through that others haven't already faced and figured out. There is so much wisdom here. Read the materials they've put together for newbies. There are a lot of great suggestions to use. I hope things get better quickly for you.
Karen
xnine
Oct 25, 2018 2:23 pm
I use a tummy sleeve, you can get them at maternity stores for about $20.00. It lasts quite a while before it stretches out.
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In addition to your pouching system, you may require the use of an ostomy accessory to enhance the performance of your system.
Learn more about ostomy accessories, and when to use them.
Learn more about ostomy accessories, and when to use them.
PillowGrabber
Oct 26, 2018 12:17 am
The wraps from Ostomy Secrets work very well... I have 3 myself... wait for a sale on the website... they are pricey... Good luck
PillowGrabber
Oct 26, 2018 12:18 am
The wraps from Ostomy Secrets work very well...... I have 3 myself..... Wait for a sale on the website..... They are pricey ... Good luck
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jrrclocks
Oct 26, 2018 3:52 pm
I have several of these: https://www.amazon.com/gp/product/B00VS1LPA4/. They work fairly well, though they seem to want to unravel a bit. I am looking for something tighter, though.
Sasquatch
Oct 29, 2018 11:57 am
These are the ones I've used since my surgery almost 2 years ago. They are kind of my security blanket. If you order from Ostomysecrets, use coupon code THANKYOU25 for 25% off your order.
TXSteve
Nov 06, 2018 10:46 pm
I use a wrap from Comfizz.com (https://comfizz.com/product/7waistband-unisex-level1/). If you wash it and then just let it air dry, it lasts a long time without getting stretched out. Good luck!
SusieSusie
Nov 06, 2018 11:01 pm
Hi there, look at Comfizz. They do wraps in different widths and different supports. I use them and they're supportive without stopping the stoma flow. Good luck!
Past Member
Nov 07, 2018 11:16 am
My husband uses a Stealth Belt, costing around $99. He even wears it to bed. He states that it gives him support and he doesn't have to worry about the bag pulling on the wafer.
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Skin barrier extenders are ostomy accessories that can help your skin barrier fit better and last longer.
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