Long-term Ileostomy Experiences?
Hey friends!
So I am eligible for the j pouch reversal, but I’m very conflicted. As someone who had severe UC, I can imagine that I will possibly face complications with pouchitis, and honestly I don’t miss being on the toilet 6+ times a day, which seems standard for the j pouch.
I’d love to hear from those who have had their ostomy for 10+ years on how aging with the ostomy has been/ if it’s been convenient or if problems can arise as your body changes / etc.
Part of me thinks I’ll go the permanent stoma route because my time with it so far has been great, but I guess I’m nervous that it could go downhill over the years and that I’ll wish I’d tried the reversal surgery. Should coulda woulda, right? Haha. Any stories you have to share are more than welcome!
thanks all, sending lots of healing your way!
x