Ostomy Topics

Greetings everyone,
I need some suggestions. I have had to change my system 3 times in one night due to leaks.
My post-op swelling has gone down, and now I have a crease from my ostomy to my belly button. My ostomy output is leaking and pooling in my belly button.
I have a barrier ring and added a barrier extender in hope that it would resolve the issue.
But I am all ears for any suggestions a ...

Greetings everyone,
I am new to the ostomy world. My ileostomy surgery was 3 weeks ago.
I am hoping that all of you can help me. I am looking for a support belt that will help keep my ostomy bag from pulling my wafer away from my skin.
So, which belts have given you the best experience?
Thank you in advance!

I remember reading a comment on here a while ago about “shiny skin.” Currently, I am experiencing this dilemma along with intermittent periods of a rash.
Consulting my ole' buddy AI and many of its offshoots, I ran across this statement.
“Avoid using ostomy powder or skin prep wipes for more than a few days at a time.
Using them for long periods of time can make skin irritation worse.” ...

I have begun to really like adhesive-coupled wafers and pouches. They don't support ostomy belts since that could pull the coupling apart. It would be nice to have a way to add further support for the pouch. I use flange extenders and they work fine. There are wraps that are advertised as supporting the pouch. Do these wraps provide support without connecting around the flange/wafer? Is anyone ...

If you were taking Loperamide and stopped, did you have problems with dehydration? We stopped due to resuming a diet of regular food after two years on a feeding tube. I thought maybe Loperamide was no longer needed, but we're having low blood pressure, kidney issues, and I'm thinking fluid loss might be part of it. If you've been through something similar, please let me know how you handled i ...

So I woke up this morning (went to bed really late by active ostomy and being here chatting) and as I finished going to the bathroom this morning, I had this weird feeling inside me... I took a wipe and wiped up front, but when I got to my butt, there were hemorrhoid-like lumps!! Never had them before. I have no clue what to do with them. I suppose you can't use suppositories because they have ...

Hi everyone, this is my 1st post, and I am hoping one of you out there may have some experiences you are up for sharing that are related to my issues, as net searches have turned up little. The Stoma Nurses are great, but collectively you are a treasure trove of information, and what you have to say is backed up by personal experience, which makes it all the more valuable.
My Stoma (‘Beastie ...

I've had my colostomy bag for two months now. I love hot dogs but was told by my nurse not to eat them or take the casing off to reduce the chance of a blockage. Has anyone had an issue eating hot dogs? My favorite is Nathan's.

Hello, I am new to this forum. I have had my ostomy bag for 9 years. Just going for my 9th year cancer test. I have been able to do almost everything during this time: swimming, biking, kayaking, and traveling, etc.
One thing that always bothers me is my periodic episodes of diarrhea. I have a small side bag that doesn't hold that much. My brother has had a bag for 50 years. He has a huge bag ...

A great story about a college basketball player who had colon surgery and now lives with an ostomy bag. Instead of giving up on sports, he's back on the court and doing what he loves. He talks openly about how the ostomy has changed his life, but also how it hasn't stopped him from chasing his goals.
It's always encouraging to see people continue their passions after surgery, especially in som ...

I'm due for reversal in 5 days. My luck, I developed a fungal infection. My nurse recommended Flonase sprayed on the skin for the itch and inflammation, miconazole powder, and skin barrier wipes. I think I will change my bag every day in hopes that it will clear up before Monday. Keep your fingers crossed for me, please. If you have any other suggestions, don't hesitate to chime in. Have a won ...

My Ostomy Association of Melbourne no longer supplies Convarcare protective barrier wipes - no sting. I have an awful time deciphering the Medicare schedule to find a replacement. Can any Australians help me out here, please?
Under the schedule, they are item number: 37444; category: BAR; product: CC: BAR CONVACARE PROTECTIVE BARRIER WIPES. Pack size: 100.
As we live quite remotely, we do not ...

I'm having poor bag adhesion due to weeping skin… Does anyone have any tips or products they can recommend? I've only had my ileostomy for about 5 weeks and my ostomy nurse is on vacation. I've tried crusting but with no success, so I'm feeling a little overwhelmed with the situation.

Hi everyone,

I'm almost four months post-ileostomy surgery, and I'm looking to start rebuilding my core strength. I haven't been able to exercise for years, so I'm starting from scratch and want to be really careful.

One of my biggest concerns is overdoing it and increasing my risk of a hernia. I know core strength is important, but I'm not sure what exercises are safe to begin with. ...

I am a widow - I have been talking to a fantastic guy online. He is perfect. He wants to meet me - do I tell him I have an ileostomy before or after we meet face to face? I do not want to lose him at this point. Could some men tell me how they would like to learn this before or after face to face? Thanks.