Ostomy Topics

My husband had temporary ileostomy surgery one week ago and has had constant nausea. Zofran helps a little. He is not drinking enough, which is critical. Has anyone had this problem, and how long does it last?

First, thanks for all the tips and tricks everyone shares. From MaO and trial and error, I've learned a lot in three years. And the funny life-happens stories are always appreciated! Now, as my body has changed a bit, I've changed bag styles for my colostomy. I have searched locally and have found no place to donate. Does anyone know of a place where extra supplies can be donated? Or if someon ...

I read CMS's proposed rule change multiple times in order to understand what is being proposed. I know many will not want to spend the time dissecting this proposal — if implemented it will effect us all whether you use Welfare or not. Companies that only produce a few ostomy products will not be able to participate in the bidding — effectively preventing them from getting any welfare paym ...

Has anyone with a colostomy and using a Hollister two-piece had a hospital inpatient stay whereby it was necessary to have the appliance changed by a nurse?
Many times my bag and disc were changed by the nursing staff without success. The base was put on damp skin; therefore, it didn't stick, and by the time the nurse reached the door, it was lifting off. I am still in the hospital, but fortun ...

Hi
I have had a pancolectomy for 18 years and very few problems. I have also had a total hysterectomy.
Recently, I have had a heaviness and pressure in the anus stump area and a slight pulling below my ileostomy. I have an MRI and CT booked, but I was wondering if anyone had something similar.
Could it be an enterocele?
Elizabeth

I had a stoma installed due to diverticulitis on May 21, 2025, and after 3 months, my hair is falling out like crazy. Dr. thinks this is due to this trauma. Then today, 8/28, I had what looks like a bowel movement from my rectum. How is this possible? Anyone had these experiences?
Help, Sandy

Hi, how is stoma hernia surgery? What is the recovery like? I may have to undergo it later this year.

Hey all

I have a question. I have had an ileostomy for 45 years!
Lately, I've had pressure, it seems, coming from my butt hole, which is sewn up!

Anybody else have a problem like that?

I have a partial colostomy (and a hernia) that I've had since November 2024. I am thinking about having surgery to reverse the colostomy and repair the hernia. I'd like to get some opinions, advice, and hear about experiences others have had with this reversal surgery and recovery. Thank you for your help.

I came across this article about a woman who says having stoma surgery gave her more confidence than she's ever had before. She had been struggling with years of pain, exhaustion, and embarrassment, and now feels like a “new woman.”
I thought it was really refreshing to read such a positive take on life after surgery. So often we hear about the challenges (and there are plenty), but it's n ...

Anyone live near Largo FL and know of support groups please. I want to connect with Osto-mates. (Spelling is wrong )

Thank you

Hello, any help with finding the best electric body hair shavers for removing hair around my stoma? Right after my operation, the first time I used a razor was a big mistake, lol! The stoma nurse said to get an electric body hair trimmer, which I have, a Norelco, which seems to work just okay. Anyone out there use anything that they are really happy with?

When I had my surgery almost 60 years ago, a nurse at Mayo suggested naming my ostomy. I'm not sure of the psychology behind that, but it turned out to be a good idea. I named mine Cedric.

Hope you are all having a wonderful morning. I'm getting an ileostomy on May 1st, and I'm starting to get really nervous, all the what-ifs. I guess my biggest (at the moment, lol) is I have dysphasia and gastroparesis and am just worried about getting proper hydration. Anyone else have dysphasia and/or gastroparesis? And how are you doing?

I was pleased to be able to read the study report of the previously closed clinical trial of the TIES III 'continent' implant device, which I have copied below courtesy of publishers NHS Health Research Authority.
Prof. Jayne makes the point that as the clinical trial was stopped early—a decision reflecting the need to redesign TIES and continue potentially as a single-arm open study [[it wa ...