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41,405 members
Feb 17, 2020

Dealing with Negative Feedback on Dating Site Due to Medical Condition

This topic is about the challenges of dating, disclosure, and dealing with leaks when living with a temporary ileostomy. After undergoing emergency surgery for colon cancer, the person now has a temporary ileostomy that needs to be emptied several times a day. They faced a hurtful reaction when disclosing their condition on a dating site, which left them feeling lonely and worried about future relationships. They also struggle with frequent leaks, especially at night. Here are some insights and advice shared by others:

- Dating and Disclosure:
- The negative reaction from the date was seen as ignorant and bullying. It's important to remember that early rejection can help identify people who aren't worth your time.
- Disclose your condition when you feel comfortable. Some choose to do it early, while others wait until a relationship seems promising. You don't have to share medical details on a public profile.
- Many people have successful relationships and active sex lives with an ostomy. Some use a corset, specialized underwear, or a wrap to conceal the pouch during intimate moments.
- Consider exploring alternative communities and resources like MeetAnOstomate.org, Ostodate.com, or the Dates and Mates podcast for support and advice.

- Leakage Prevention and Product Suggestions:
- Frequent leaks are not typical. Most people with an ileostomy change their pouch every few days and rarely experience leaks.
- Make sure the stoma doesn't undermine the wafer. Consider using convex wafers, barrier rings, or flange extenders for better security.
- Try products from different manufacturers like Hollister, ConvaTec, or Coloplast, which offer free trial kits.
- To prevent nighttime accidents, use a large washcloth beside the pouch, wear ostomy underwear or snug sleep shirts, and consider high-output or larger-capacity pouches.
- Clean your skin with water only after using adhesive remover to avoid seal failure.
- If leaks continue, consult an experienced stoma nurse. You might need stoma revision or hernia management.
- If you face supply issues, have your surgeon provide a detailed letter each month to ensure you get the necessary supplies.

- Mental and Emotional Support:
- Online groups like MeetAnOstomate.org and Inspire.com offer shared experiences and friendship.
- Remember, your ostomy saved your life but doesn't define you. Rebuild your confidence, pursue your interests, and know that love and companionship are still possible.
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