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Aug 14, 2020

Need Help with Sore Stoma Edge & Hernia - Desperate for Solutions!

This topic is about dealing with a peristomal hernia that has caused the stoma to retract, leading to soreness, bleeding, and pain. The stoma has pulled back into a tunnel due to a side-wall hernia, and the output is not dropping cleanly into the pouch, which is causing skin issues and discomfort. Despite multiple attempts by a stoma nurse to resolve the issue, the problem persists and is significantly affecting the person's quality of life.

Here are some helpful pieces of advice and insights:

1. First, identify the nature of the problem:
- If there is a complete lack of stool passage, it might indicate a blockage, which requires immediate hospital care.
- If the stool exits but "pancakes" and doesn't drop into the pouch, there are management strategies that can be tried.

2. If you suspect a blockage, go directly to the A&E/ER. In the UK, you can also call NHS 111 for urgent guidance when available.

3. Reach out to ostomy product manufacturers that have specialist nurses:
- ConvaTec and Coloplast both offer nurse helplines. They might suggest products or techniques that your local nurse hasn't tried yet.

4. Follow up with your colorectal surgeon. Sometimes, significant parastomal hernias require surgical stoma revision and/or hernia repair to restore proper function.

5. Consider switching from a one-piece appliance to a two-piece system. Many users report less leakage and easier management of "pancaking" with this setup. A separate barrier wafer can remain in place for up to seven days, while the pouch can be changed more frequently.

6. Explore the "Collections → Premium Content" section of the forum for more threads on hernias, pancaking, and sore stoma edges.
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