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Mar 03, 2021

Strange Sensations After Reversal - Need Advice!

This topic is about someone who is experiencing unusual sensations at the site of their former stoma after having it reversed. Here’s a bit more detail and some helpful advice:

- The person is about two and a half months post-reversal. Initially, their surgeon closed the entire wound, which unfortunately led to an infection. The wound was then reopened, cleaned, and allowed to heal naturally, and it is now fully closed.

- They are currently experiencing daily sensations at the old stoma site. These include feelings like liquid leaking under the skin, occasional itching, and a stretching or tugging of muscles. However, there is no visible discharge.

- There is no pain or fever, and their bowel movements are described as “very good.”

- The original ileostomy was created due to suspected Crohn’s disease. A colonoscopy before the stoma suggested Crohn’s, but a colonoscopy right before the reversal showed no evidence of the disease.

- The person notes that these sensations began only after the stoma was taken down. They are also puzzled by the conflicting colonoscopy results regarding Crohn’s disease.

- They have an upcoming appointment with a stoma nurse and are hoping for some reassurance.

Here are some insights and advice that might be helpful:

1. The healing process can cause odd sensations like stretching, itching, and fluid-like feelings due to scar tissue formation, settling bowel loops, and regenerating nerve endings. These sensations do not necessarily indicate a problem.

2. It’s common to feel similar sensations after large meals. Another person mentioned feeling movement under the skin where their stoma used to be and hearing frequent gurgling noises.

3. It might be a good idea to ask the surgical team if biopsies were taken during the most recent colonoscopy and to request the pathology results to confirm or rule out Crohn’s disease.

4. Surgeons often provide limited postoperative details, but experienced stoma nurses can offer practical explanations and reassurance.

5. Major ostomy product manufacturers have stoma-nurse advisors who can be contacted for additional support and guidance.
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