This topic is about dealing with persistent leakage and skin issues after having a colostomy. The person sharing their experience is facing continuous mucus and fecal leakage from the rectal stump, which is causing painful skin breakdown similar to a severe diaper rash. This situation requires them to bathe frequently, which is exhausting due to low energy levels. They are also frustrated because the colostomy was supposed to help with healing, but the incontinence continues. They have been prescribed antibiotics to prevent infection, but the medication itself is causing discomfort.

Here are some pieces of advice and insights shared by others who have faced similar challenges:

1. Shared Experience and Emotional Support:
- Many people have experienced ongoing leakage after a colostomy and understand how distressing it can be. They offer emotional support and encourage staying in touch for mutual encouragement.

2. Surgical Option – Rectum/Anus Removal (Proctectomy):
- Some have found relief from chronic drainage by having the remaining rectum and anus removed. This surgery stopped their pain, swelling, leakage, and infections.
- Recovery from this surgery can be challenging and may affect self-esteem, but those who have undergone it feel it was worth it.
- It's important to note that a proctectomy can change pelvic anatomy and may impact fertility, which should be considered if future pregnancy is a possibility.

3. Pre-Surgery Optimization:
- One person suggests starting Total Parenteral Nutrition (TPN) to build strength before undergoing major surgery.

4. Coping Tips:
- Some informal suggestions include wearing pads to manage fistula leakage, considering temporary solutions like a "plug," and trying to maintain a positive outlook while exploring long-term solutions.