I am really sore after a few days of mucus leaking continuously from the bottom, and the wound on my bottom is still so sore. I am in agony as it has caused nappy rash around the wound, and it's starting to break down the skin. The whole reason for having the stupid shit bag is so that my bottom heals. Did they forget to mention, "Oh, by the way, you may still continuously leak feces and be incontinent even though you have a colostomy"?
I am so pissed off having to bathe 4 times a day. I haven't got the energy to walk to the end of the road. How do I manage getting in and out of the bath 4 times a day?
The doctor has given me an antifungal cream, which isn't going to last 2 minutes as it will get leaked onto and washed away by the yuck. Grrrrrrrrrrrrrrrrrr. Doctors think they know everything, and it took me 4 hours to even speak to a doctor as I refuse to sit on hard A&E seats for 4 hours just for some cream.
I am really grumpy today, but I am on antibiotics "just in case I get an infection."
Really feel for you, read my post back to you on the forum. Seems our situations are really quite similar. I am so with you on what is the point of a colostomy to fix your rectum/perianal area when you still go to the toilet/leak etc. It drives me crazy... I could scream sometimes! I already went through months of incontinence before the stoma, as you say didn't know it would continue with it! Maybe we should invent a plug? Desperate measures, eh? Lol. Take care and feel free to contact me. Hope tomorrow brings better things, pami xx
MeetAnOstoMate is a remarkable community of 41,420 members.
“Every morning with my coffee, I read here and feel wrapped in warmth - I hardly post, but it still feels like family.”
“Our oncologist literally wrote down the link; they said more patients need this website.”
“This place pulled me out of the dark. I went from lurking to living again.”
“At 3am, someone’s awake somewhere in the world. I’m never alone here.”
Yeah a year ago I wouldn't have known what to ask to find out I had a parastomal hernia. The only reason I knew about them is from this site. Thank goodness for this site. Otherwise I would still be clueless. If I hadn't though from stuff on here to ask my surgeon about having a hernia, then I would have never had the CT and I would have never known that she should have known about it a year ago.
I'm so sorry. I've been where you're at, and it's not fun at all! My advice: get on some TPN, build yourself up, and have the rest of the rectum out!
It was the best surgery I had because all the drainage problems were gone! But... It might not be for you if you plan on having a baby later on in life, as the removal of the rectum can tilt or flip, causing infertility! Hope it can start you thinking about how you're going to recover?
It's up to you how soon you recover if you have a positive attitude... I know it's not so easy to do!
Believe me, it took me years to figure out how to be ill every day for the rest of your life. We don't have a choice but to get better sooner or later!
Learn how convex skin barriers work and what benefits they offer.
Guess what? On antibiotics again as I have another infection. Really sore, feel really rough, and the doctor informed me the tablets will make me feel a bit off for a few days. Oh, what fun! I really have had enough of these infections on my bottom wound. Thank you for your replies, ladies. xx
Getting Support in the Ostomy Community with LeeAnne Hayden | Hollister
