This topic is about someone who had a challenging experience with a J-pouch surgery that didn't work out as planned. After the surgery, they had to deal with some complications, but now they are recovering at home. They want to share their experience to help others who might be considering a J-pouch. Here are some insights and advice from their journey and from others who have been through similar situations:

1. The person who shared their story now has an ileostomy and finds it to be a positive change. They mention that living with an ileostomy is "great" and involves changing the appliance every 3 to 4 days. With a positive attitude, they say you can lead a normal life.

2. Many people find an ileostomy manageable:
- The time between changing the appliance can vary from 3 to 4 days up to 12 to 16 days, depending on factors like sweat, activity level, and personal habits.
- It takes about six weeks to adjust as the stoma settles. Finding the right pouching system and having a skilled surgeon are important.

3. Body size can affect how well the appliance fits:
- Being overweight, especially due to long-term steroid use, might cause the flange to fold and leak.
- Thinner individuals often find it easier to get a good fit.

4. The psychological impact of having an ileostomy is significant:
- It's important to continue with your usual activities and social life to prevent feeling isolated.
- If anxiety or intrusive thoughts become too much, seeking professional help or considering anxiety medication can be beneficial.
- Focus on the positives, like being free from the urgency, odor, and fear of accidents that might have been part of life before.

5. The overall message is that with time, the right equipment, and a positive outlook, life with an ileostomy can become normal again, or even better than living with bowel disease.