This topic delves into the challenges of living with both a stoma and the potential for stroke-related disabilities. It reflects on the fears and practical difficulties that might arise when managing a stoma becomes complicated by physical or cognitive impairments. Here are some key points and insights shared by individuals facing similar situations:
- The poems shared by the originator express the fear of relying on two functional hands and a clear mind to manage a stoma. They highlight the added difficulties if a stroke leads to paralysis, speech issues, memory loss, or other cognitive challenges.
- There is a concern about losing the dexterity needed to handle incontinence or a stoma, and the emotional impact of being unable to communicate these needs effectively.
- The discussion broadens to consider how continence, stomas, and disabilities intersect, with a poignant observation that experiencing a stroke while dealing with incontinence is particularly challenging.
- In a follow-up, the originator mentions their worsening rheumatoid arthritis and wonders if losing hand function might bring similar challenges as those described in the poems. They recall an elderly person with severe hand deformities who managed daily tasks with difficulty, offering a glimmer of hope.
- One member shares their fear of becoming completely dependent on others for pouch management, expressing that such a situation felt worse than death. However, a surgeon advised against this mindset, emphasizing that life can still be meaningful with assistance.
- Another member, who has rheumatoid arthritis and multiple sclerosis, discusses how declining hand dexterity and cognitive function make stoma care increasingly challenging. They express regret about choosing a colostomy, highlighting the importance of considering long-term health changes when making decisions about continence solutions.
- The story of an elderly man managing severe hand deformities serves as an inspiring example. It shows that humor, determination, and adaptability can help individuals continue stoma care despite significant physical limitations.
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