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41,452 members
Mar 18, 2022

Seeking Ostomy Support and Community

This topic is all about finding support and community for those living with an ostomy. It highlights the importance of connecting with others who understand the journey, whether online or in person. Here are some helpful insights and advice for anyone looking to connect with others in the ostomy community:

1. If you're new to the community, online platforms like Reddit can be a great place to start. They offer valuable answers and a sense of belonging, even if you haven't met another ostomate face-to-face.

2. You can give your stoma a fun name, like "Colon Feral," to add a bit of humor and personality to your experience.

3. If you're still learning how to navigate online forums, don't worry. Take your time to figure out how to reply to people individually and engage in conversations.

4. Check out the "Members Reviews" section under COLLECTIONS on the site. It’s a great way to see how others rate and use the site’s features.

5. Feel free to jump into discussions. The forum's tone and topics can vary, so find a space that feels right for you and make it your own.

6. Many members find the community to be friendly and helpful, so don't hesitate to ask any questions, no matter how big or small.

7. A long-time ileostomate with over 50 years of experience shares some wisdom:
- Today's products and options are much better than they were decades ago, so take advantage of the variety available.
- Even if you feel confident, ongoing peer support can still be very rewarding.
- Consider a permanent membership if you find the site valuable.

8. Education is crucial. Visit the United Ostomy Association of America (UOAA) at www.ostomy.org for guidance on various topics like diet, blockages, skin care, clothing, products, travel, and activities.

9. To combat loneliness and share experiences offline, look into joining a local in-person support group.
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