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Nov 23, 2023

One Year Post-Ileostomy Reversal - My Journey and Insights

Topic Explanation

The forum topic is about an individual sharing their one-year post-ileostomy reversal journey and offering support to others who might have questions about the process. The original poster (OP) underwent two surgeries with a healing period in between and faced complications such as an ileus and a partially collapsed lung. They have ongoing motility issues and are undergoing physical therapy and laser treatments to aid healing. The OP is open to answering questions about ileostomy reversal and providing support to others in similar situations.

Advice and Insights

- General Support and Encouragement:
- Many participants congratulated the OP on reaching the one-year mark post-reversal and expressed hope for continued improvement.
- Several members shared their own experiences with ostomies and reversals, offering solidarity and encouragement.

- Complications and Healing:
- One participant mentioned that they had a J-pouch for 18 years before opting for a stoma, indicating that different solutions work for different people.
- Another participant shared their experience with a temporary loop ileostomy due to inflammation and adhesions, highlighting the complexity of individual cases.

- Post-Surgery Issues:
- A participant mentioned their husband's post-reversal ileus and the use of high constipating narcotics, seeking advice on managing bowel movements.
- Another participant shared their experience with post-surgery constipation due to Oxycodone and the challenges of managing pain medication while needing to maintain bowel function.

- Medical Advice and Community Support:
- It was suggested to consult the medical team for specific post-surgery issues like ileus and constipation.
- Participants emphasized the importance of sharing experiences and seeking advice within the community for better management of post-surgery complications.

- Personal Experiences and Procedures:
- One participant detailed their own reversal process, including the use of a temporary loop ileostomy and the steps taken to ensure proper healing before the final reversal.
- Another participant shared their experience with a colostomy reversal and the importance of managing pain medication to avoid constipation.

- Communication and Support Networks:
- The OP and other participants offered to communicate via private messages or phone calls to provide more personalized support and share detailed experiences.
- The importance of community and the support of others who have undergone similar experiences was highlighted as a key factor in managing the journey post-reversal.
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