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Apr 13, 2024

Need Help Coping with New Ostomy

Coping with a newly formed ostomy after leaving the hospital can be a challenging experience, both emotionally and practically. If you’ve just come home and are feeling overwhelmed, know that you’re not alone. Here are some helpful tips and insights to guide you through this transition:

- Be gentle with yourself and give yourself time to adjust. It’s completely normal to feel overwhelmed in the first few weeks.

- Acceptance and Mindset:
- Remember that the ostomy was created to save or improve your life. Try to focus on the positive aspects.
- It often takes about a year to feel comfortable with daily care and up to four years for full emotional acceptance. Progress may come in waves.
- Try to focus on living your life rather than letting the ostomy dominate your thoughts.

- Education and Professional Support:
- Schedule visits with a Wound, Ostomy, and Continence Nurse (WOCN) or a home-health nurse for hands-on training and personalized product fitting.
- Use forums and reputable resources to learn about care routines, diet, troubleshooting leaks, skin care, and odor control.

- Products and Sampling:
- Reach out to major manufacturers for free samples. Experiment with different wafers, pouches, support garments, wraps, ostomy vests, and night-drainage attachments to find what works best for you.
- Carry odor-control drops for added confidence.

- Diet and Output Management:
- Determine whether you have a colostomy, ileostomy, or urostomy, as the frequency of emptying or changing will differ.
- Keep a food and output diary, possibly using a mobile app like “mySymptoms,” to track how meals affect stool volume, consistency, gas, and timing.
- Expect your stoma to shrink as post-op swelling decreases, which means you’ll need to adjust cutting templates.
- Eating often triggers output, so use this predictability to your advantage before social outings. Eat a small snack, empty your pouch, and then go out wearing a support wrap.

- Leak and Clothing Tips:
- Dark-colored clothing can help camouflage potential leaks. If a leak occurs in public, spill some water on yourself to create a discreet reason to change.
- Support garments, ostomy belts, or wraps can help keep the pouch stable and reduce pulling.

- General Encouragement:
- Recovery involves both physical healing and emotional adaptation. Take it one day at a time.
- Many older ostomates live full, active lives once they have mastered the basic skills and gained confidence. You are not alone, and it will get easier.
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