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Jun 08, 2024

Ileostomy for Colonic Inertia - Seeking Reassurance and Advice

This topic revolves around the concerns and considerations of someone named Molly, who is dealing with slow-transit colonic constipation, also known as colonic inertia. She is contemplating an ileostomy and is anxious about the potential for the motility issue to affect her small intestine after the surgery. Molly is looking for reassurance that an ileostomy could improve her quality of life and is curious about the possibility of preventing the spread of dysmotility.

Here are some insights and advice shared by others:

- It's important to rely on information from peer-reviewed studies and advice from specialists in gastrointestinal motility and colorectal surgery, rather than unverified internet sources.

- Regarding the concern about motility "migration" to the small bowel, most surgeons believe this is uncommon or not proven. Several individuals who have had the surgery (3, 8, and 17 years post-op) report no issues with small-bowel inertia.

- Before surgery, ensure a comprehensive motility work-up, which may include tests like gastric emptying studies, small-bowel transit tests, Sitz-mark studies, capsule endoscopy, radioactive-egg studies, and manometry.

- A suggested surgical approach is to start with a loop or temporary ileostomy. If it proves successful, you can then consider a total proctocolectomy with an end ileostomy. If opting for a permanent ileostomy, many recommend removing the rectum and anal canal simultaneously to avoid future complications.

- Some hospitals and clinics are noted for their excellence in this field, including the Cleveland Clinic, Mayo Clinic, University of Michigan Motility Center, and Ferguson Clinic in Grand Rapids.

- Living with an ileostomy can be managed with diet and fluid adjustments. Foods like bananas, rice, and peanut butter can thicken output, while coffee, warm drinks, and soda can thin it. It's also important to be mindful of gas build-up.

- Strategies to manage output and prevent dehydration, such as using thickening foods and rehydration solutions, are commonly used. Many people report significant improvements in their quality of life, allowing them to engage in activities like marathon running, kayaking, skiing, and traveling.

- Stress can negatively impact motility, so managing stress is crucial. The Cleveland Clinic offers psychological support and stress-reduction resources specifically for colorectal patients.

- For further reading, there are open-access articles available from the National Library of Medicine and other sources.

- Surgery should be considered a last resort and only after a definitive diagnosis of slow-transit constipation. Each case is unique, and success depends on individual factors such as motility patterns, other health conditions, and the expertise of the surgical team.
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