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Sep 17, 2024

Filing for Disability with a Colostomy Bag: Approval Experiences?

This topic is about a person who, at the age of 61, had to undergo emergency surgery due to diverticulitis, which resulted in a permanent colostomy. They also have a long-standing condition called Polycythemia Vera, a type of incurable blood cancer. After the surgery, hospital staff and the surgeon advised them to apply for Social Security Disability Insurance (SSDI), as both conditions are covered. However, the approval process is taking a long time, and they are curious if others with a colostomy have been approved for disability benefits.

Here are some helpful insights and advice shared by others:

1. Application timelines:
- It can take a minimum of 6 to 8 weeks to get a response.
- Some have waited about 6 months, while others have waited up to 2 years, eventually winning at an Administrative Law Judge hearing.
- Once approved, back-pay is usually issued from the original filing date.

2. Medical grounds for approval:
- Polycythemia Vera or cancer is more likely to meet SSDI criteria than the ostomy alone.
- Consistent documentation from your doctors stating you cannot work can greatly strengthen your claim.

3. Ostomy and employability:
- Many people return to full-time work, even jobs with moderate physical activity, within weeks of colostomy surgery.
- A parastomal hernia can often be managed with a hernia support belt, allowing continued employment.
- Having an ostomy does not automatically mean you are "disabled"; approval depends on overall functional limitations.

4. System backlog and advocacy:
- The Social Security Administration is understaffed and overwhelmed, so expect delays and be persistent.
- Disability lawyers or advocacy firms can improve your odds, but you may need to "battle it out."

5. Financial considerations and lifestyle:
- Compare projected disability income with potential earnings or retirement benefits.
- Disability payments may be modest; consider whether working, partial retirement, or disability best meets your financial and mental health needs.
- Age-related hiring challenges in IT are real, but there are alternative, less-physical jobs available; keep your options open.

6. Mind-set:
- Many emphasize not letting the ostomy or a surgeon’s opinion define your capabilities; numerous people continue to lead active, fulfilling lives and careers with a positive, determined attitude.
See full discusison
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