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Jan 29, 2025

Not going for a reversal

This topic is about the decision some people face regarding whether or not to undergo ostomy reversal surgery. An ostomy is a surgical opening created to allow waste to leave the body, and sometimes people consider reversing this procedure. Here are some insights and advice on why someone might choose not to pursue a reversal:

- For some individuals, a reversal is not physically possible due to the specific surgical path they have taken.
- There is a fear that a reversal could bring back previous medical issues or create new complications, potentially making things worse.
- Many people become comfortable with their stoma, valuing the stability it offers, and prefer not to risk further surgery.
- After thorough research, some conclude that keeping the ostomy is the safest option for maintaining their quality of life.
- The decision to keep a stoma or opt for reversal is personal, and it's important to respect both choices, hoping each person finds relief from pain and difficulty.

Here are some additional pieces of advice and insights:

- Living with an ostomy can lead to an excellent quality of life with the right support and education. The United Ostomy Associations of America (UOAA) highlights that ostomates can enjoy activities like swimming, playing sports, working, and having intimate relationships, fully embracing life.
- Reversal surgery carries risks, such as:
1. The need for two additional surgeries.
2. Potential loss of the remaining colon, leading to an ileostomy.
3. Possible pelvic floor dysfunction.
For some, these risks may outweigh the benefits, especially if another stoma will still be needed or if only a specific issue like a fistula requires repair.
- Whether considering a reversal or sticking with a stoma, it's crucial to conduct thorough research and evaluate personal circumstances carefully, particularly for chronic conditions like IBD where long-term outcomes are uncertain.
- Engaging in online forums and honest discussions with peers can provide valuable, experience-based guidance to help individuals make informed decisions about whether to stay with their stoma or pursue a reversal.
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