This topic is about dealing with dehydration and loss of appetite after having ileostomy surgery. The person sharing their experience had surgery three months ago due to complications with their sigmoid colon. Since then, they've faced several challenges, including an inverted and inflamed stoma, leading to multiple hospital stays. Despite various interventions, they struggle with eating and drinking, and their kidney function is a concern. Here are some helpful insights and advice for managing these issues:
1. Hydration is crucial, especially without a colon. Aim to drink at least 2 liters of fluids daily. Plain water isn't enough; include electrolyte solutions like Liquid I.V., Pedialyte, or DripDrop. Mix it up with teas, milk, juices, and popsicles, but limit caffeine as it can increase fluid loss.
2. Make a habit of sipping fluids frequently, even if it's challenging. Think of it as essential for your well-being.
3. If your stoma is recessed or inverted, consider discussing surgical revision with your doctor. A flush stoma can lead to chronic leakage and make managing output and hydration more difficult.
4. Maintaining an electrolyte balance is as important as fluid intake. Use oral rehydration powders or ready-mix packets to help with this.
5. Instead of large meals, try eating small, frequent snacks. Options like crackers, cheese, peanut butter, bananas, candy, gum, smoothies, and protein shakes can be easier to manage and help stimulate appetite.
6. Protein-rich drinks or homemade smoothies can support healing, as protein aids in wound repair.
7. Some people find that starting with cold liquids, sweet foods, or CBD/Delta-9 gummies can help stimulate appetite. Always check the legality and consult your doctor before trying these.
8. Popsicles and frozen treats can be a good way to get fluids and add variety to your diet.
9. Keep a close eye on your kidney function tests. Chronic dehydration can lead to serious kidney issues if not addressed.
10. Talk to your doctor about the possibility of adjusting or changing your appetite stimulant, especially if it's causing side effects like nausea and dizziness. You might also discuss adding or adjusting anti-nausea medications.
11. If your current dietitian isn't providing the guidance you need, consider asking for a referral to one who specializes in ostomy or short-bowel patients. Your insurance might cover out-of-network specialists.
12. Recovery can be a slow process. Many people have experienced similar challenges after ileostomy surgery but have seen improvements over time with consistent hydration and medication adjustments.
See full discusison