This topic is about a situation where a person was preparing for an ileostomy reversal, but a test revealed that the rectum was completely closed, leading to a delay in the procedure. The person is seeking advice and experiences from others who might have faced a similar issue. Here are some insights and advice shared by others:
1. Possible Causes:
- Rectal strictures, often seen in Crohn’s disease, can narrow or completely block the rectum.
- Scar tissue, inflammation, or a rectum that hasn't been used for a long time can also cause closure.
- If the ileostomy was initially done due to cancer, it's important to rule out tumor recurrence, although new cancer is unlikely if cancer wasn't the original issue.
2. Diagnostic Suggestions:
- CT or MRI scans with contrast dye might provide more information and are safer than trying to insert a scope into a completely closed rectum.
- The planned flexible sigmoidoscopy should help identify whether the blockage is due to stricture, scar tissue, inflammation, staples, or a tumor.
3. Treatment Experiences Shared:
- One option for a closed or inflamed rectum is surgical removal, resulting in a permanent end-ileostomy and a surgically closed rectum.
- Some surgeons have managed to reopen a scarred-shut rectum, but this can lead to significant incontinence, requiring the use of glass dilators to keep the opening open.
- If a significant portion of the colon remains, a colostomy might be considered, but many end up with a permanent ileostomy if the rectum cannot be saved.
4. Practical Considerations & Quality-of-Life Comments:
- Living with a permanent stoma is often easier than dealing with incontinence or ongoing rectal issues.
- A surgically closed rectum should not leak; if it does, it could indicate suture failure or infection, which needs urgent medical attention.
- Those with a rectal stump may still pass mucus and feel urges, which is normal and not harmful.
5. Overall Expectation:
- While the situation is not inherently dangerous, if the rectum cannot be safely reopened, a reversal might not be possible, and a permanent ileostomy could be the safest option.
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