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Aug 02, 2013

Seeking Advice for a Young Adult Facing an Ileostomy

Living an active life in your twenties is something many people cherish, especially if you love sports and outdoor activities. For a 25-year-old man with Crohn’s disease, the prospect of having an end ileostomy might seem daunting, especially since he used to enjoy roller hockey, wakeboarding, and rock climbing. He and his partner are seeking reassurance and advice from others who have been through similar experiences and continue to lead active lives.

Here are some insights and advice from people who have been there:

1. Many people with ostomies, ranging in age from 30 to 66 and with years of experience from 2 to 51, share that they can still do everything they did before their surgery. This includes activities like swimming, snorkeling, surfing, jogging, skiing, snowshoeing, climbing, and playing sports like softball, basketball, and football. They also manage demanding work schedules and enjoy hobbies like hunting, fishing, and snowmobiling.

2. For contact and extreme sports, using protective gear is important. Products like stoma guards, specifically the "Ostoguard," are designed for activities like hockey. Hollister offers sport-specific guidance, which can be found on their website.

3. There are inspiring role models, such as former NFL kicker Rolf Benirschke, who played seven seasons with the San Diego Chargers after his ileostomy, proving that professional-level athletics are possible.

4. Some individuals have been able to stop taking high-dose medications for Crohn’s or IBD after surgery and report feeling healthier than before.

5. Many people find that their quality of life improves significantly after recovery. Some even feel better immediately after surgery. Maintaining a positive attitude is often highlighted as crucial for adapting and thriving.

6. Community support is invaluable. There are opportunities for one-to-one mentoring on product selection, emotional support, and practical tips for engaging in sports like skating and wakeboarding.
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