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Aug 29, 2013

Flushable Colostomy Bags and Reversible Procedures

This topic is about the use of flushable colostomy bags and exploring surgical alternatives for reversing a permanent colostomy. Here's a breakdown of the experiences and advice shared:

- A user has had a positive experience using flushable colostomy bags for five months. They find these bags to be hygienic, discreet, and almost odor-free. Plus, they eliminate the hassle of disposal when away from home, as they can be flushed safely unless there's an issue with the sewage system.

- The user also mentions three surgical techniques that are said to potentially eliminate the need for a permanent colostomy:
1. Pyloric Valve Substitution: This involves replacing the removed anal sphincter with a valve made from stomach tissue, a technique developed in the U.S.
2. APPEAR Operation: This involves installing a remotely controlled artificial sphincter, developed in the U.K.
3. ESGN (Electrical Stimulation of the Genitofemoral Nerve): This uses electrical stimulation in the thigh to mimic sphincter control, also developed in the U.K.

- Readers are encouraged to look up more detailed information about these procedures online.

- One person shared their personal experience with ESGN-type electrical stimulation, which unfortunately did not restore continence for them. They experienced an internal prolapse, leading to further unsuccessful surgeries and eventually a permanent colostomy.

- There are general cautions about reversal procedures:
- Much of the available literature, such as on Pyloric Valve Substitution, is quite dated, often from 2011 or earlier. This means the current effectiveness and availability of these procedures might be limited.
- It's crucial to conduct thorough, up-to-date research and consult with your medical team to set realistic expectations.

- When considering the risk and benefits, some patients who have lived well with a colostomy for many years find that the potential benefits of invasive reversal surgeries do not outweigh the risks involved.

- There are also concerns about the quality of pouches. One user mentioned ongoing quality-assurance issues with Hollister brand pouches, which affects their decision to avoid further interventions.
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