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Dec 17, 2017

Seeking Advice on Colostomy Surgery

The topic is about preparing for a permanent colostomy following rectal cancer surgery. The person facing this surgery is looking for advice and insights from others who have been through similar experiences, as they are feeling nervous despite receiving medical guidance. Here are some helpful tips and insights shared by others:

1. Stoma Placement:
- Ask your surgeon or ostomy nurse to place the stoma just below the belt line to minimize rubbing and make it easier to conceal.
- Proper pre-operative marking, which you've already done, is crucial for long-term comfort and a good fit for your appliance.

2. Surgical and Early Recovery Tips:
- Discuss the possibility of laparoscopic or robotic surgery with your doctor, as many find recovery easier with these methods.
- Start walking as soon as the hospital allows, as it helps speed up the return of bowel function and overall recovery.
- Avoid heavy lifting or straining your abdomen until your surgeon gives the all-clear to prevent hernias or other complications.
- Consider using a gel seat cushion to ease pain from rectal sutures or prolonged sitting.

3. Attitude and Adaptation:
- Approach the situation with a positive mindset; many find their colostomy to be life-saving and eventually see it as a normal part of life.
- Expect an adjustment period, but know that daily life, including travel, is very manageable once you establish a routine.
- Remember that having an ostomy can eliminate the urgency of bathroom trips, offering more freedom rather than limitations.

4. Appliances and Supplies:
- A Convatec two-piece system with Velcro-seal pouches is recommended by a long-term user for its reliability.
- Request free samples from various manufacturers like Convatec, Hollister, and Coloplast, as what doesn't fit now might work later as your body changes.

5. Long-term Health and Fitness:
- When you're ready, seek advice from a physical therapist or knowledgeable trainer to safely rebuild core strength.
- Regular exercise is encouraged, but only after you've healed adequately and received medical clearance.

6. General Encouragement:
- Many survivors emphasize that challenges become easier with experience, and the only thing that can hold you back is yourself.
- Stay connected with the ostomy community for ongoing support and practical problem-solving.
See full discusison
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