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40,893 members
Feb 01, 2010

Seeking Stories from Stoma Patients Unrelated to Common Conditions

Topic Explanation
The forum topic is focused on gathering personal stories from individuals who have a stoma but do not have common underlying conditions typically associated with needing one, such as ulcerative colitis (U/C) or irritable bowel syndrome (IBS). The initiator of the discussion, Ed, shares his own experience of receiving a stoma following complications from surgery for an abdominal aorta aneurysm. He expresses a desire to hear from others who have had similar unexpected surgical outcomes leading to a stoma, aiming to find support and shared experiences within the community.

Extracted Advice and Helpful Insights
1. Unexpected Medical Issues Leading to Stoma:
- One individual got a temporary stoma to allow a wound to heal, which was initially a small surgical procedure, but later developed complications including a hernia.
- Another person experienced a severe blockage with no prior bowel issues, leading to emergency surgery and the loss of a significant portion of their colon.
- A hysterectomy gone wrong led to another individual's colon being accidentally cut, resulting in sepsis and ultimately a colostomy.

2. Complications and Subsequent Adjustments:
- One person discussed suffering from idiopathic constipation which led to a series of surgeries and eventually a J pouch. Despite not having a diseased gut, complications arose post-surgery, including peritonitis from an undetected leak, leading to further surgeries.
- Another shared their ordeal with a hernia mesh surgery gone wrong, resulting in severe complications and multiple surgeries. This person now faces challenges with their ileostomy due to the hernia and has ongoing legal action regarding the mesh.

3. Support and Community:
- Multiple individuals expressed gratitude for the forum and the shared stories, emphasizing the comfort found in knowing they are not alone in their experiences.
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