I've been having nothing but water in my ileostomy bag for probably over 8 months now, and lately it's so bad that I'm not even sleeping at all because my bag is filling up so fast, like every 30-45 minutes. If I'm lucky, I get an hour. But by an hour, it's so full I can hardly open it, it just "explodes". So just before I went to my GI Dr., I started keeping track of how many times a day I was emptying it for about 3 days/nights, and it was 20 times during the day, and 5-6 at night.
So last week, my Dr. put me on Octreotide injections. I haven't been able to start them yet; it took a little while to get the authorization for the meds. Now that I have the meds, they are saying I have to have a separate authorization for the needles!
So in the meantime, I was wondering if anyone else has had this problem and has used this medicine, and if it worked or not. I can't afford to stay this malnourished, no more hospital stays. I've already been admitted 3 times in the last 2 months.
Calico
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Hollister
Are you a caregiver for a child with an ostomy? In the summer months, this can become more challenging, thanks to heat, humidity, water activities, and travel plans.
Learn more about caring for children with an ostomy on vacation.
Learn more about caring for children with an ostomy on vacation.